Basic Needs, End Of Life Costs
Donation protected
Sweet little Diana was born on January 1st with Holoprosencephaly (HPE), which is a rare disease that causes brain defects, facial deformity and other life altering issues.
With the severity of her condition, Diana needs a feeding tube, constant oxygen and many medicines throughout the day to keep her seizures controlled.
She is currently at home on hospice so that she can spend what days she has surrounded by the people that love her. Today she is fighting strong at 9 weeks old, which is a huge milestone for our sweet girl!
Her respiratory and seizure activity as of late hasn't been too well, plus she is currently battling pneumonia - so she has been on constant doses of morphine on top of her other 5 medications.
Though Dad works, we all know money can be tight as we currently moved into a bigger house so the kids have the room they need, plus the room for all the Diana's medical equipment needs. With still needing household items, odd things the kids need, daycare, medicine and other end of life planning - we decided to try GoFundMe, which has helped us rent a better home for our children.
We ask that you keep her in your prayers and possibly share our link too!
We appreciate you and it would be a blessing to the family!
Organizer
Jessica Seneca
Organizer
Niagara Falls, NY