Private health help

Hi I'm Claire. For the people that don't know me my story started three years ago when I contracted covid at work, working as a palliative care team leader in my local NHS hospital. Since then I have been on a very long rollercoaster of a journey, which has included nearly dying two times. I have long covid, and hypopiturism which basically means my pituitary gland isnt sending a signal to my adrenals to produce cortisol. This is called secondary adrenal insufficiency and now means I'm on lifelong steriods. Whilst investigating this they found a pineal tumour (brain tumour). I suffer daily with numerous seizures, severe pain, nausea, breathlessness, severe fatigue, vision and mobility issues to name but a few. I was due to have brain surgery from the only neurosurgeon that would operate in August 2022. It was cancelled due to contracting covid for the third time. Since then my liver and bladder have started to breakdown. I've also had covid a fourth time adding to my already scarred lungs. Due to this I'm now to high anaesthetic risk and so he won't operate. Just before christmas 2022 I was diagnosed with POTS after two of my children were earlier that year. I've had numerous health care professionals involved and yet still my symptoms are worsening despite my sixty eight tablets a day. I have been referred to a consultant in Harley Street. He is wanting to improve the working of my organs so brain surgery may be reconsidered and my symptoms improved.

As you can imagine all of this comes with a price tag. Up to now I have managed with the help from my friends and some family members. People that really know me will know this has took alot for me to ask for help. The initial tests and follow up appointment will be at least £2500. Anymore money I receive will go towards funding any further tests/ follow up appointments and suggested lifelong medication. I've lost so much this last three years including my job and career, which I loved, but also two wages. My husband has had to give up his job to be my main carer and to care for my three children of which all three are classed as disabled with their own health and learning needs. Two of which despite their symptoms and issues care for me. The amount of times I have woken from a seizure with one holding some tissue to stop the bleeding and the other holding my hand reassuring me with medication. Barnardo's support them as young carers, but this is a huge worry for them and they shouldn't have to be dealing with all of this. As you can read whats happening to me also effects my family's quality of life. I didn't explain my story for sympathy but more for an explanation. Anything you can help give will be gratefully appreciated. It will go towards getting me some answers, potential treatment and improve not just myn but also my family's quality of life.

I finish by thanking the people that have been there for us throughout this time, from supportive text messages/calls, to providing meals/shopping, financial help, down to the supportive hug. I don't need to name you, you know who you are thank you. We couldn't have got this far with out your help. Many thanks Claire