Jaydens journey

Hello I am a mother of 4 children , my middle child jayden is 3 years old and lives daily with CE which is short for cloacal extrophy , his bladder is outside his body his penis is in half testicles are in half he has no rectum so he has a colostomy bag , tethered spinal cord separated hips/pelvic which makes his legs go to the side and he walks a little different than others , and a golf ball sized mass on his spine his abdominal wall did not fuse together during pregnancy resulting in all of these things jayden lives four hours away from the hospital that will be correcting all of these things for him we go to 4 or more appointments a month for jayden preparing him for the operation which he will have several , jayden will come home with leg cast to his hips and will have to recover in a wheelchair , after he heals he will re learn how to walk and then again prepare for the next operation , he will spend alot of his life going through multiple operations to have a better life thats my goal in the end to make him happy and comfortable and being able to lead a normal life ! Hes a very strong little boy , it cost alot of money to go back and forth with the stress of bills and my other three childern at home as well during this time im asking any of my friends and family to help us be able to lift the stress off all these trips that have to be made for jayden anything will help us continue to get jayden everywhere he needs to go even if you could only donate a dollar it would still help us on this journey we never do this and we don't like to but at this time its super hard to keep up with everything when you have a child that needs so much done in a short amount of time and we do our best ! Im a stay at home mom 24/7 and full care taker of jayden and my other three childern and any friends and family that cant help us along this journey all we would ask is to please pray for jayden through all of this we truly thank you from the bottom of our hearts!