Beau's Journey

Hi everyone looking for some help. I know some of you follow my superhero’s journey. My little Beau has been diagnosed with a rare condition called Hirshsprungs Disease and Waardenburg Shah Syndrome and the myelin coating from his spinal cord to his brain hasn't fully developed so this has caused developmental and neurological delays. There is very little help and support for these conditions as they are so rare and there is nothing medically that can be done.

In order to give Beau the best quality of life I was going to try raise some money for intense physio for him. I found a company based in Manchester and I have explained it all to them they have sent a quote and also said they could try help with his head control and getting him to sit up unaided and if miracles do happen hopefully get him walking one day!

Thank you for taking the time to read about my little superhero, and a huge heartfelt thank you for anyone who donates to Beaus Journey!

I will be posting updates throughout Beaus journey!