
Help Tavian Fight!
Hi, my name is Jennie, my son Tavian Rivard was diagnosed with Auto Immune Encephalitis, which started 5 years ago when he was 18.
The disease progressed and he got sicker and sicker, with never ending grand mal seizures. It took over 3 years to find a diagnosis, as the disease is very rare.
We came to California from Colorado, so he could see the UCLA hospital for help overcoming this. We live in a fifth wheel trailer, and are so grateful for it. It made this trip possible.
This has been a long road, he lost ability to work and had to pause his college classes and the worst part for him was losing his driving license and freedom.
We're been to multiple doctors and hospitals trying to find a cure for 5 years now. We are always going to the emergency room for treatment. He's been septic twice now and had to stay in the ICU.
He is barely able to eat, can't stop throwing up everything and is down to 90 pounds. He may need feeding tube put in so he doesn't die from starvation and dehydration.
It's very possible he will need brain surgery, but they can't find where the seizures are coming from, nor what the auto immune deficiency is caused by. They are still looking for the cause. It means he continues to endure endless lab testing, probing and exams. Next hospital stay at UCLA is in Janurary.
We are just trying so hard to succeed in our journey so hopefully, Tavian can regain his life and freedom back and get back to college!
He needs a better environment and more emotional support, we don't have much family around, so our support system is very small. You're welcome to join the fightI
I cannot leave him alone, he passes out and drops to the ground frequently, or has multiple violent seizures that can turn fatal. That means I cannot work, so I'm
trying to raise funds to make ends meet.
Any donations would be greatly appreciated and put towards our roof and the endless medical expenses. Thanks for helping Tavian FIGHT to beat the odds!
Happy Holidays!