Raising awareness of Sepsis after losing our gorgeous Alfie

ALFIE JONES FOUNDATION

Our eldest son Alfie was diagnosed with a brain tumour at just three months old, he fought this and hydrocephalus, a complication from the tumour tirelessly majority of his short life.

He was the absolute light of our lives, he lit up every room wherever he went, he had an infectious laugh and the ability to smile even in the hardest of times.

Alfie became unwell one Saturday evening whilst his younger brother had also been unwell with a viral infection. Alfie was put to bed and checked on over night several times and seemed ok.

Early on the sunday morning Alfie was hot to the touch, his skin was red with a mottled like appearance on his chest, still without a temperature. Alfie was immediately taken to hospital, on arrival at A&E he was short of breath with a high heart rate and a low blood pressure. Within a matter of hours Alfie had fallen asleep and he didn’t wake up. Sepsis had taken control of his body and it could not be controlled.

We as a family want to raise as much awareness of sepsis as possible, we were never warned about complications of infections. Of sepsis. Alfie had very little speech due to the damage from the brain tumour and we want to make as many parents, families and carers aware of sepsis when the child or adult may find it harder to communicate.

We will be using donations to create books, leaflets, posters and spreading as much awareness to families especially those who have children & adults with disabilities and communication difficulties, we also want to help families that have affected by sepsis.

Sepsis kills 5 people every hour and we want to change that after losing our gorgeous Alfie.

Thank you so much,

Rachel & Craig