Raising money for Stinky's medical treatment!
Donation protected
A Word from Alex:
Hello everyone!! You might know me as Alex or Stinky or StinkRat or some other combination of online name, but no matter what you know me as (or if you don’t know me at all!), I want to thank you so much for visiting my page! I have Multiple Sclerosis, a neuro-autoimmune disease that tricks your body into thinking things like your brain, spinal cord, and optic nerves are invaders that must be destroyed. I’ve also survived two traumatic brain injuries which each caused a host of issues.
I must manage symptoms including but not limited to a constant debilitating migraine with light and sound sensitivity, nausea/vomiting, balance issues, numbness, tingling, internal vibrating, loss of gross and fine motor control, bladder dysfunction, pelvic floor dysfunction, confusion, disorientation, speech difficulties, orthostatic hypotension, depression, anxiety, and more.
I use assistive devices like a wheel chair, walker, cane, and shower chair. I often require a lot of assistance with my daily living activities. I’m unable to work, drive, or often perform basic self-care without assistance.
While treatments that increase my quality of life SIGNIFICANTLY do exist, they are incredibly expensive. The pain treatments, the treatments that have given me some semblance of hope and relief, are the most difficult to obtain. They are performed in one clinic about 5 hours away. Because I have to have 3 to 4 infusion treatments including ketamine, lidocaine, propofol, and magnesium that each last 4 to 5 hours a piece per treatment session every 3 months, I have to include hotel or Airbnb fares in my treatment cost. Additionally, the treatments are only PARTIALLY covered by my insurance, leaving me with a balance due each time. It is an incredibly costly treatment.
For a regular check up with my MS specialist, we have to travel an hour and a half each way. Those travel expenses add up quickly, especially for a lower income person.
The Disease Modifying Drug Infusions that I need every six months are also about an hour and a half away each direction, plus any payments associated with them.
As you can imagine, these costs add up SO fast and don’t even take into account the daily expenses of managing multiple debilitating conditions.
Literally every single penny you give or have given is appreciated more than you’ll ever know. The kindness that this community shows is mind blowing, and I will be forever moved by your willingness to help make the world a little better place <3
Hello everyone!! You might know me as Alex or Stinky or StinkRat or some other combination of online name, but no matter what you know me as (or if you don’t know me at all!), I want to thank you so much for visiting my page! I have Multiple Sclerosis, a neuro-autoimmune disease that tricks your body into thinking things like your brain, spinal cord, and optic nerves are invaders that must be destroyed. I’ve also survived two traumatic brain injuries which each caused a host of issues.
I must manage symptoms including but not limited to a constant debilitating migraine with light and sound sensitivity, nausea/vomiting, balance issues, numbness, tingling, internal vibrating, loss of gross and fine motor control, bladder dysfunction, pelvic floor dysfunction, confusion, disorientation, speech difficulties, orthostatic hypotension, depression, anxiety, and more.
I use assistive devices like a wheel chair, walker, cane, and shower chair. I often require a lot of assistance with my daily living activities. I’m unable to work, drive, or often perform basic self-care without assistance.
While treatments that increase my quality of life SIGNIFICANTLY do exist, they are incredibly expensive. The pain treatments, the treatments that have given me some semblance of hope and relief, are the most difficult to obtain. They are performed in one clinic about 5 hours away. Because I have to have 3 to 4 infusion treatments including ketamine, lidocaine, propofol, and magnesium that each last 4 to 5 hours a piece per treatment session every 3 months, I have to include hotel or Airbnb fares in my treatment cost. Additionally, the treatments are only PARTIALLY covered by my insurance, leaving me with a balance due each time. It is an incredibly costly treatment.
For a regular check up with my MS specialist, we have to travel an hour and a half each way. Those travel expenses add up quickly, especially for a lower income person.
The Disease Modifying Drug Infusions that I need every six months are also about an hour and a half away each direction, plus any payments associated with them.
As you can imagine, these costs add up SO fast and don’t even take into account the daily expenses of managing multiple debilitating conditions.
Literally every single penny you give or have given is appreciated more than you’ll ever know. The kindness that this community shows is mind blowing, and I will be forever moved by your willingness to help make the world a little better place <3
Fundraising team: Alex! (2)
David Bowers
Organizer
Marshall, MO
Alex Cunningham
Team member