Rare medical condition Potts puffy tumor

Hello everyone I am fundraising for my 8 years old son who just went through an emergency surgery for a rare condition called Potts Puffy Tumor, it was a 7 hours long Surgery and they had to remove some of his skull bone because it was damaged. He’s going to have another surgery in 2 months to get his skull bone replaced. 
He’s finally home with a picc line to his heart so he could get antibiotics straight to his heart. He needs 24/7 monitoring and support. I have lost my job too now I am not sure how to handle all this. 
Thank you for all your support