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Judith's Rare Neuroendocrine Tumor of the Breast. Cancer.
Donation protected
Hi, I'm Judith Magee.
I am not a writer by any means. I hope I can explain this well to what I am going through. $20,000 is not the full amount accrued but an amount to help me see the other side. I had to use credit cards and make loans for fuel, food, bills to get me through this time, any help is appreciated. Shares are appreciated. Prayers are appreciated.
The fundraiser asked for a picture and I chose the one I took on the day I received my triple rare diagnosis, Neuroendocrine tumor of the breast, Oct 5, 2021. Grade 3, stage 3. My doctor said I was going to lose my hair so nervously, I took lots of hair pictures with my hair down. Most of my pictures were in a ball cap or my hair was up. I had a mammogram, ultrasound, biopsies. From there, I had PET scan with no evidence of disease located anywhere else. My diagnosis is triple rare 1) Neuroendocrine. 2) of the breast and is usually in the stomach areas. 3) Neuroendocrine is slow growing, could take years and mine was super aggressive.
From the time of my diagnosis, for 3 months, 2 boards at different hospitals would discuss my case and options. Within the 3 months, I named it (the tumor) Myrtle and a childhood friend, Michelle, added Mae who could not stay. So Myrtle Mae who could not stay had tripled in size and was starting to bulge from my shirt, becoming noticeable just by standing beside me or in front of me while talking with me.
I was excited during the 3 months to find not far from me, on the south shore, was a whole building dedicated to Neuroendocrine. A Neuroendocrine specialized center in Kenner, La. People from all over go there to see top notch specialists. I make a video appointment with the head specialist who spoke to me for 45 mins, educating me on the diagnosis and sadly informs me they can not take me there. She has all kinds of surgeons for different stomach areas but she does not have a breast specialist. She did want to oversee my case and did consult with the other 2 boards. It was decided I would have chemo for lung cancer, surgery and radiation. I don't have to tell anyone, not all chemos are the same. I did 2 and they kicked my butt. I won't lie or pretend I'm strong. I suffer every day with ringing ears, hearing loss and neuropathy in my toes/feet. The oncologist had hoped it would be gone by now. I hurt all over and I'm constantly figtige, low energy, wanting to sleep after 2 hours of waking up, which they did say this all was to be expected.
I started chemo the 1st of 2022. I wasn't able to donate my long hair. I ended up with pneumonia and covid the 1st and 2nd week.
I finished chemo in May. I had a recovery time to build up my immune system and had my 1st mastectomy. I had hoped and still hope for natural reconstruction one day. A surgeon put a spacer in to keep my skin stretched. I ended up with 3 infections that antibiotic cleared up but after the 4th one, culture showed it was an infection that the spacer had to come out. I went in for emergency surgery the next day.
After I recovered from emergency surgery, I had radiation.
I was supposed to have all my procedures done and over with by the end of 2022. However, with the infections and emergency surgery, it delayed radiation and future surgery.
I now have to have a second mastectomy because I am BRACA 2 positive and hopefully reconstruction at the same time of that mastectomy. The reconstruction doctor put off my visit 3 times and I finally seen him on the 4th attempt. I do understand emergencies come up with them also. I saw him about 3 weeks ago and in 2 months I will go back to get my upcoming surgery date.
If you have read this far, thank you. I will be forever grateful for your prayers, positive thoughts, and if you can spare any amount, it will be most appreciated. With Neuroendocrine, stress can feed it. You can make a difference by helping me with this stress I am carrying that is beyond my control.
Cash App is $Jmagee1975 with my picture
Venmo is @JudithMagee with my picture
Fundraising team: Team Christi (2)
Judith Magee
Organizer
Franklinton, LA
Christi Harrison
Team member