Re-Build-A-Body; help Amy keep her teeth

UPDATE:

As of the 17th of July we have the treatment plan!! Split over 6 appointments it’s about 11/12 fillings so far braces and the possible major jaw surgery are quite a while down the line but it’s a long, ouchy line indeed, the total for the fillings and all that prevention & restoration is £2K. I’ve got my savings pot going as well as all the help I’ve had so far going into the consultation, X-rays, assessments I’m very hopeful that 2K is doable  split up over the appointments! Updates and what not to follow, also here’s an x-ray you can get a load of how funky things are in there, can you spot the baby tooth!? 

Hi I’m Amy and since I was born I’ve never been quite right, wether that was jaundice, or stopping breathing and going blue as a baby to having numerous issues with my milk teeth and the worst over bite my Orthodontist had ever seen in my childhood to hospitalisation for body wide vascular problems as a teenager. It’s evident I wasn’t put together properly.

Whilst I’ve been in and out of hospital over the past 5 years fighting to be seen and treated for PeVD as well as constant invasive tests and the odd surgery my teeth have been rapidly declining thanks to an array of symptoms and causes.

Due to the relentless bullying I got for my teeth growing up I was fully under the belief my teeth were already awful and beyond help, so I tried to pay very little attention to them. I was bullied out of wearing my retainers both times I tried them to the point I was pulled out of school for a while.

it’s something I’ve only come to connect recently but still quite upsetting that the unfairness I faced as a child led to me not realising my teeth were as healthy as they could’ve been back then and that they were slightly yellow because my enamel wasnt right and I was ill…as a result I never smiled much and now I really regret that.

As someone living with EUPD, PeVD and currently undergoing testing life is already tough as it is. But dealing with dental problems on top of that has made it unbearable. I'm at a point where I'm begging openly for help ,which I’ve been so against doing this entire time.

I’m hoping getting my teeth sorted will improve my state of mind, confidence, and overall health as well as prevent infections that’re knocking me out more than I usually am.

I’m on both personal independence and limited work capability, as well as modelling on the side but the costs of managing my illnesses and the equipment I need or may need in the future whilst also trying save to go private for my PeVD means that on my own I’m not able to afford getting my teeth fixed.

I'm aiming to raise funds that will help cover my dental treatment costs that I can’t fully front myself so I can hopefully get back to my regular amount of work so I can afford to peruse private help for my vascular conditions as well as actually be able to afford the necessary aids, foods, supplements, devices, monitors and so on that managing my current conditions call for.

Lately, my dental issues have become worse, making it difficult to eat or even smile without pain. I have missing fillings, half a tooth that’s slowly chipped away, a spectacularly damaged front tooth that has come away in sheets almost from drinking out of bottles, lots of exposed gum from how my teeth are spaced and a LOT of jaw, and gum pain due to the odd shape and lay out of my jaw. From my understanding with how my conditions effect me i need to focus on prevention and specialised care which is hopefully what this will help provide otherwise it’s very likely that I’ll lose them

I’m desperate to advocate for others like me and get PeVD known about and out there, but I can’t do that with where I am now. I’m currently undergoing tests for the majority of known co-morbidities of PeVD, I’m expecting this to be a long tedious process.

when I’d thought I’d crossed the finish line with my laparoscopy, realising I had a long way to go was soul destroying. I’ve come a long long way in the last 2 years since diagnosis, but I’ve still got a long way to go so I’m asking you to help me on the next leg of the journey.

Any amount, even a share will help massively! An initial appointment with a private dentist is scheduled for July 7th, and I'll update about the treatments and final goal amount afterwards

Thank you for reading my story

Amy

if you want to learn more about PeVD and how it can effect someone check out This post I made c: