Rejsila needs help!

Hello to everyone!

I am Rejsile's aunt, and I am asking for help from all of you for my little niece who is only 6 years old.

On January 13, 2021, Rejsila was diagnosed with a very rare genetic disease. At that time she was only 3 years old and enjoyed full health. However, some glands and deformations in the body began to appear. In Albania, no one understood what was happening to the body of little Rejsila. Analyzes and examinations were fruitless, but no one found what he had. Until they decided to send some blood samples to Germany for a more specialized service, there and where I finally got an answer

A very rare genetic disease called PTEN. But how it would be cured and whether it was possible to cure this was even more difficult. After many, many searches, finally a hospital in Rome, Italy called "Bambino Gesu" gave us hope for a cure. But the training was very expensive, the trips from Albania to Italy were also expensive. But thanks to the support of friends and family and also thanks to the donations of a foundation "Albanians for Albanians" he managed to go to Italy from time to time for medical check-ups for 3 years. Precisely when the doctors in Italy hoped for a newly discovered experimental treatment, where it should stay for at least 1 year, the collected money ran out. They didn't have the opportunity to go.On October 18, 2023, Rejsila and her parents must be in Italy to renew the contract with the "Bambino Gesù" hospital and start treatment, but they alone cannot do anything, as they have no financial means.

However little opportunity you have, anyone who wants to contribute, please help us. Even if this is only with a distribution!

"And whoever saves a life, he has saved all mankind". May Allah reward you!

Pershendetje te gjitheve!

Une jam tezja e Rejsiles, dhe kerkoj ndihme nga te gjithe ju per mbesen time te vogel vetem 6 vjeç.

Me 13 Janar 2021 Rejsila u diagnozfikua me nje semundje shume te rralle gjenetike. Ne ate kohe ajo ishte vetem 3 vjec dhe gezonte shendet te plot. Mirpo disa gjendra dhe deformime ne trup filluan ti shfaqeshin. Ne Shqiperi askush nuk po e kuptonte se cfare po ndodhte me trupin e Rejsiles se vogel. Analiza dhe ekzaminime pambarim ,mirpo askush nuk e gjeti se cfare kishte. Derisa vendosen qe te dergonin disa mostra gjaku ne gjermani per nje sherbim me te specializuar ,aty dhe ku me ne fund morem nje pergjigjje

Nje semundje shume e rralle gjenetike e quajtur PTEN . Por si do kurohej dhe se a ishte e mundur qe te kurohej kjo ishte akoma edhe me e veshtire. Pas shume e shume kerkimeve me ne fund nje spital ne Rome te Italise i quajtur "Bambino Gesu" i dha shprese per kurim. Por trajnimi kushtonte shume, vajtje-ardhjet nga Shqiperia ne Itali kushtonit gjithashtu. Por fale mbeshtetjes se miqve dhe familjareve e po ashtu edhe fale donacioneve te nje fondacioni " Shqiptaret per Shqiptaret" arriti qe per 3 vite te shkonte here pas here ne Itali per kontrolle mjeksore. Pikerisht kur mjeket ne Itali shprese per nje mjekim eksperimental te sapozbuluar ,ku i duhet te qendroji minimumi 1 vit ,parate e mbledhura mbaruan. Nuk paten mundesi qe te shkonin me. Me 18 tetor 2023 Rejsila me prinderit e saj duhet te jene ne Itali per te rinovuar kontraten me spitalin " Bambino Gesù" por te vetem ata nuk mund te bejne me asgje ,pasi nuk kane mundesi finaciare. 

Sado pak mundesi te keni,kushdo qe ka deshire te kontriboji ,ju lutem na ndihmoni. Qofte kjo edhe vetem me nje shperndarje! 

" E kush shpeton nje jete,ai ka shpetuar gjithe njerzimin" . Allahu jua shperblefte!