Ride 4 Genetic Cures Australia

Melbourne Dad Daniel Feller will be joined by a band of 'fellas' as he cycles around Port Phillip Bay on March 25-26 raising funds for research into cures for Usher Syndrome and other inherited genetic diseases. Born profoundly deaf, Daniel's five-year-old son Harry hears and speaks perfectly thanks to the Cochlear Implant. But Harry's deafness was caused by a recessive gene carried unknowingly by his parents - a gene that will cause him to progressively lose his sight. Deaf and blindness occurring together are hallmarks of the incredibly rare condition Usher syndrome, with which Harry was diagnosed aged three.

Daniel and his wife Hollie are now racing against time to preserve Harry's sight, and have recently teamed up with leading scientists Associate Professors Alice Pebay and Alex Hewitt to found Genetic Cures Australia. The aim of the foundation is to fund research into rare inherited diseases such as Usher syndrome - finding cures for sufferers like Harry and establishing Australia's reputation as a leader in gene-based therapies worldwide.

The Cycle Around the Bay will span two days - starting from Elsternwick Park at 9am on 25 March and Portsea Hotel on 26 March - with family, friends and the community encouraged to support the riders through donations to Genetic Cures Australia.