Robert's journey with DIPG brain tumour

Our beautiful son Robert has been diagnosed with a DIPG (Diffuse Intrinsic Pontine Glioma); it is a brain tumour found in the part of the brain stem called the pons. The pons controls essential bodily functions, including heartbeat, breathing, swallowing, eye movement, eyesight and balance. 1% of children make it five years with this condition from diagnosis, and the average survival rate is nine months.

This diagnosis has come as a complete shock for our family as it was picked up from a routine eye test, and currently, Robert does not have any of the symptoms, but this could change very quickly.

Robert is a very caring young man who was diagnosed with autism at the age of 4. He enjoys gaming, Lego and playing with his younger brother, who is nine years old and has autism. As a family, we would like to treat Robert to as many wonderful experiences as we can whilst he can do so. Making as many memories as possible is very important to our family.

We are grateful for any donations you feel you can give to make Robert’s journey wonderful, and happy memories last forever. Any monies left after our journey will go to DIPG research to help other families not go through what we are currently going through.

One of Robert’s wishes is to visit Euro Disney, and with your amazing help, we have managed to make that wish come true for him in November 2022.