Robs amputation fund(please read)
*****Update.*****
The response has blown me away. Once I reach £15k which is the minimum I need to get me legless. But obviously I'll have many other things to sort like physio and therapy etc. Please please please keep donating and sharing every penny donated will go towards my medical bills and this WILL change my life for the better.
Obviously go fund me take a percentage of the money so I would love to get over and above the £15k to enable us to not have to worry about where we find the money for other medical bills to do with my "chop".
I owe my life to you all. I'm Ever so ever so grateful for every penny and every share.
Please keep going. I'm in debt to you all x
Hi everyone
My name's Rob and here is my story.
In 2011 after injuring my knee playing cricket the hospital found a 4-inch bone tumour in my distal femur. Obviously, this came as a bit of a shock to us. After some scans and tests, I was sent to a hospital in London to have the tumour removed which went well and that was the end .... or so I thought!
In 2013 I had to have an up-to-date scan to make sure ever thing was still ok. Unfortunately, the tumour had come back, but this time the tumour was 7 inches long so I needed yet another urgent operation and they would hollow out the femur and pack it with a seaweed-type filler. I had the operation, but just after I awoke to find I had no sensation in my left leg from the knee and below. The doctors obviously hadn't planned for this and I could tell from the surgeons' faces that things were not right. After a couple of days, they conducted some nerve-ending tests which all came back as a negative, so in essence the nerves that connect the feeling in the bottom of my leg had been cut and damaged.
I left hospital and myself and my family tried to get on with our lives the best that we could, albeit with me now being disabled on crutches and using a wheelchair. This obviously put huge pressure on my wife and 2 young children.
I have always been very sporty and played a lot of rugby, cricket, football and hockey, which obviously was no longer an option for me.
In 2014 my wife saw an advert for disability cricket for Dorset in which I contacted and signed for them. Things were on the up; I was back playing the game I loved and made my debut in May 2014.
During my 2nd game for Dorset while batting I hit the ball and felt my leg collapse and I ended up on the floor in the worst pain that I've ever experienced or imagined. The ambulance was called and I was rushed to hospital. The paramedics administered some ketamine and other strong pain killing medication which sedated me.
When at the hospital the doctors informed my wife that my leg had snapped through my femur and the only thing stopping my bone going through the skin was my cricket pads. The injury happened because the bone hadn't healed correctly so basically it was an accident waiting to happen.
I was immediately put in to traction until they decided the best course of action. I was in traction for 2 days and initially they were going to keep me in traction for 6 months but after Carla (my wife) kicked up a stink they decided to operate a few days later.
I had the operation to insert the fixator, pins and plates. The operation took over 4 hours to complete.
I eventually went home to rest and repair.
The pain was excruciating but I thought it would go away after some time. I had many physio sessions to try and improve my pain and was put in a ROM leg brace to stabilise my leg and I was on crutches full time.
After 12 weeks I had an x-ray to see how the healing was going. The surgeon told me that the break wasn't healing and to wait a few more weeks to see if it started healing. Again, I had an x-ray but still the break wasn't healing at all and the pain was still as bad as ever.
I have been told that the fracture won't ever heal which isn't the news I was hoping for.
I'm currently on 29 of the strongest pain-killing medication available but it just doesn't stop the pain at all. Eventually the body will become resistant to the medication to the point where the tablets will do nothing at all.
I'm unable to sleep at night due to the pain. I'm often moody because of the pain I'm in and I just can't go on like this anymore. Even sitting here typing this I am in pain and have tears in my eyes as the pain is constant.
I have lost over 50% of muscle tone in my left leg and I'm unable to bend my knee.
I honestly can't describe the pain I'm in 24 hours a day. I have to wear a brace all the time and sometimes my leg still collapses.
I have thought long and hard about what the best thing to do is and what course of action to take. My doctor agrees that an amputation would be the best thing for me.
The NHS won't consider me for an amputation and just want me to continue taking medication to manage the pain, so a private amputation is my only hope. It's not that they don't think I'd benefit from it, but I think they are still resistant to the idea of a leg being chopped off when it's not already hanging off!
The medication that I'm on has altered how I am. I'm not the fun, bubbly outgoing happy person I used to be.
The pain is getting too much; I cry daily due to the pain and I'm genuinely at the end of my tether.
I have done so much research and spoken to many amputees who have gone through a similar thing to me.
My wife Carla is fully supporting me with this and agrees this would be the best thing all round.
I don't want to be in pain any longer. I want to be able to play with my 2 children in the garden, I don't want to say NO to them anymore.
I want to be the husband my wife deserves and not someone who is forced to stay at home and not go out on walks and family days due to the pain debilitating me.
With the way prosthetic limbs have come on over the last few years I guarantee that I will have the life that I had before all my problems. I know there can be complications and problems, and I'm not naive to that – I have friends who have had amputations and I know it's not always plain sailing. However, I don't feel that I have anything to lose – I have a chance to be pain reduced or even better pain free, and so I have to grab that chance and (pardon the pun) run with it!
My amputation would be above the knee and to help me get back my life. I want this done AS SOON AS POSSIBLE. That being said it's not something I'm rushing into – I've done research, spoken to people who have had the procedure, and consulted my GP who is in full agreement that it's a good idea. I'm still relatively young (well I'm 40 next year) and I want to be able to play cricket with my children. Research indicates that the longer a body endures pain, the more the brain becomes accustomed to it meaning that if you leave it too long you would still experience the same level of pain even after the limb is removed (phantom pains). Also, the younger and fitter you are when you have the procedure, obviously the less complications there will be and the easier and quicker recovery will be.
I'm not the type of person to ask for handouts and I feel genuinely embarrassed having to ask people who don't know me for donations but I'm at the end of my tether and will do ANYTHING it takes to be pain free with a new leg and able to get on with our lives and enjoy the time with my wife and children.
My wife has been my rock through everything and she deserves better than what I am at the moment.
Please, please if you can spare any change to help me reach my target I would be ever so grateful.
All money raised will pay a surgeon to amputate my left leg and also pay for a brand new prosthetic limb. This will change my life. Please if you can spare any change it would be amazing.
I'm sorry that my story was long but I wanted to tell you my story in great detail. Please, please, please help me achieve my target and allow me to become legless!!
Below are a list of things I've achieved since my disability :-
In 2015 I enquired if I could train to become a cricket coach which I have now done and I'm now a fully qualified ECB level 2 coach although I'm not coaching as much as i want to because of the pain but this will change once the amputation is done and I will be doing a lot more in time.
I've been capped 6 times for England disability (CFPD)
I'm a Middlesex disability county cricketer.
I was part of the ECB talent pathway.
Many thanks
Rob