Save a life. Help James Recover From MCS.
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My Life Fell Apart After Moving Into A House With Black Mold Inside The Walls
Hi this is James Carlson and I am reaching out to my community to raise funds for medical treatment and living expenses. I've become very Ill after a three week exposure to a house with black mold. My health has been consistently declining and I have been bedridden most days for the last year.
To learn more about what MCS is like watch this quick 3 minute video:
What is MCS?
MCS stands for Multiple Chemical Sensitivity which is a Neuro-Immune Conditioned Syndrome. It is a complex pain disorder that has roots in both mental and physical health. Overexposure to biotoxins or synthetic chemicals causes MCS to develop. The immune system becomes overreactive to very small amounts of every day chemicals and biotoxin exposure and the body loses it's ability to easily filter out toxins effectively. The condition has similarities to both fibromyalgia and PTSD but is triggered specifically by smells and fumes.
Even small exposure to things in the every day environments can make someone with MCS very sick. For example using the wrong dish soap, hugging someone wearing perfume, or being around any amount of car exhaust can make me sick and in pain for multiple days.
Because of my illness I have spent most of my time in the last year in my room with my air purifier. It has become my safety bubble. Operating in the outside world has become very difficult for me. Most public spaces have become untolerable and even a simple ride in the car leaves me sick and in pain for a day or two. Housing has also been very difficult as many houses that normal people can tolerate are too contaminated for me to live in.
What does it feel like to have MCS?
Living with MCS is an absolute nightmare sometimes. Normal things that most people take for granted become huge battles. It's like if every time you left the house, you came home with a cold or food poisoning. If you left the house too many times in a week, or if your house became contaminated with a trigger, you get so sick it's hard to get out of bed or even eat.
On top of living in a constant horror movie of sickness and disease, MCS is not very well understood. Until just 10 years ago most doctors did not believe it was real and treated patients with this illness like they were mentally ill. People often refuse to understand and will treat me like I am being paranoid or crazy. No matter how many times I explain to people, show them my lab tests or show them my doctor's notes, some people still treat MCS like it is not real. They see me as dramatic, crazy and an annoyance and will refuse to make even simple changes that could make a world of difference to my health. In the meantime I feel like I'm going to die by the end of the day.
MCS Symptoms
- Nerve pain through the whole body (Fibromyalgia)
- Muscle and Joint Pain
- Neuropathy
- Brain Fog
- Fatigue
- Lung Pain
- Difficulty Breathing
- Headaches
- Rashes
- Fast and Irregular Heart Beats
- Nausea
- Muscle Spasms
- Seizures
- Panic Attacks
- Memory Loss
- Delirium
How Will the Donations be Used?
MCS still not fully understood yet by the medical community. There is no straightforward path to healing but there are many individuals with this illness who have successfully recovered. The road back to health for each individual is different and requires trying different treatments to find what works. Unfortunately most treatments for this horrendous illness are not covered by insurance.
I am currently seeing an integrative medicine doctor that specializes in treating people MCS and similar syndromes. A good portion of the money raised will go towards receiving treatment from her and treatments that she recommends. The rest will go towards my living expenses until I am well enough to start working again.
I would also like to try some alternative medicine treatments including Panchakarma and Kambo when enough funding can be raised.
Related Diagnoses
Besides MCS I have also been diagnosed with Fibromyalgia, Chronic Fatigue Syndrome, Hyperacusis, Irritable Bowel Syndrome, Mycotoxin Poisoning and Heavy Metal Poisoning (Arsenic, Mercury, Cadmium, Barium, Cesium, Uranium, Antimony and Thallium).
Thankyou so much for checking out my Gofundme.
If you are in a position to do so, please make a donation so that I can receive the medical treatment that I need. I will be forever grateful for whatever you can offer
Also please please please share my fundraiser on your social media platforms.
A simple share is so powerful. Besides helping me get my life back, you will be bringing awareness to this often very misunderstood disease. You can be part of helping countless others receive the treatment that they need in the future.
Any emotional or spiritual support would also be greatly appreciated. Don't hesitate to reach out if you feel called to. I would love to hear from you all.
Thankyou so much I know that with your support I can heal and get better.
Organizer
James Carlson
Organizer
Lincoln, NE