Save Yehor from Spinal Muscular Atrophy!

My name is Tetiana and I am opening this fundraiser for the son of my friends Yehor. All the costs will be directed to pay for his medication Zolgensma. Yehor has spinal muscular atrophy Type 2. It is a rare genetic disorder that causes muscle decay until the child cannot breathe anymore and dies. A medication can save his life, stop and reverse some of the damage done by this disease. It is called Zolgensma and it costs 2.3 mln $. The family is from Ukraine and the government does not help these children, there is no health insurance system in place and charities do not support personal fundraisers this big. This is why Yehor needs our help! Every donation matters and brings him a step closer to a healthy life! Yehor is already 1 year and 2 months old and Zolgensma can only be administered before the child is 2 years old and/or weighs less than 13.5 kgs. Please help this family! Thank you You can read more about this family in the following article
 
 

https://www.scarymommy.com/mothers-fight-save-her-baby/