SAVE MARK-LAST CHANCE FOR LIFE-ZOLGENSMA INJECTION

Mark Piskarev is a 1 year old boy (DOB 04/20/19) with Spinal Muscular Autrophy, Type 1, (SMA, Type1) from small city in Russia, Cheboksary. He is in need of just one injection of Zolgensma, that can save his life.  ZOLGENSMA is the most expensive gene medicine  which costs $2.125 million.  Mark doesn't have time to wait long for treatment. The injection should be done before he turns two years old, to be effective. SMA Type 1 is a genetic disease characterized by the progressive loss of motor neurons — the nerve cells that control muscle movement. This leads to muscle weakness and atrophy. Cognition is not affected by the disease and kids with SMA type 1 are bright, responsive, and alert. Unfortunately, infants with SMA type 1 do not survive past age 2, usually because of respiratory failure. Mark's parents, Anna and Leonid, with the help of Russian Non-Profit Organization (www.fondani.ru), have collected 8.04% (as of 6/3/20) out of the total amount. ANY contributions to save his life would be greatly appreciated. A family story and supporting documents can be found on the website: www.markpiskarev.ru or on Instagram page of mother @anyuta_iv_. A small donation can help to SAVE MARK'S LIFE. He needs US.


Attached are the following documents: Letter from Novartis re: price for Zolgensma; Genetic Test Results; Test for Zolgensma Treatment; Letter from the Hospital with package price.