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Save Em

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***Edit 30/08/17

UPDATE:
Em’s mum Leanne here with an update.

Thanks to everyone’s incredible support, in October 2016 Em was able to go to the clinic in Switzerland for 4 months of life saving Lyme Disease treatment. The treatment is working! Her health has improved greatly but she’s still very unwell, bedridden and suffers everyday from dozens of debilitating symptoms. The road to recovery is long but we’ve chosen the right path. We’re very hopeful that Em will one day be free from Lyme disease.

When we arrived at the clinic in Switzerland we discovered that her life long Lyme disease was deep-seated and the infection had spread to every part of her body, including her cells and brain. This meant the length of stay and cost of treatment were more than double what we were prepared for. This was crucial and the minimum amount of treatment that Em needed, as it took her more than 3 months of intensive treatment 7 days a week to start improving.

The 4 months of treatment cost $210K. We received $40K from more than 400 generous friends and strangers. Without this incredible support Em wouldn’t have been able to receive this life saving treatment. I remortgaged my home and took out loans to pay for the rest. We are doing this with my single salary as a school teacher. I’m up to my eyes in debt and the banks grant me anymore loans. I will continue to put every penny I have towards saving Em.

The details of the ongoing treatment Em needs are unknown but will definitely need to continue for years and cost many more 10s of thousands of $$$ as it is not at all subsidised or acknowledged by our government. Em’s treatment must continue until she reaches remission, if it stops she will deteriorate rapidly. The best thing for Em would be to return to Switzerland for a short stay for intensive treatment. It breaks my heart that I won’t be able to afford that.

We’re working towards fundraising events but we’re low on manpower. If you can lend a hand in any way please get in touch. Please help by donating, sharing this Go Fund Me page and the Facebook page www.facebook.com/SaveEmRosner. If we keep going we’ll not only save Em but give her the normal, happy, healthy life that she deserves.

Love Leanne xo

___________________________________________________________

Imagine living everyday with flu like pains and fever, migraines, nausea, vertigo, blindness, fatigue and being too weak to walk with no relief in sight.
This is what Em battles every day, plus many more debilitating symptoms.

Em has late stage Lyme Disease.

Emily Rosner is an amazing, tenacious 26 year old Australian. For years Lyme Disease has left her bedridden and physically and financially dependent on me, her, mum, Leanne. Not only is her entire body constantly in excruciating pain, but her vision is deteriorating. Her debilitating cognitive dysfunction often leaves her so disoriented that she's unable to remember simple things or form sentences.
She urgently needs to go to Switzerland for treatment. You can help save Em.



WHAT IS LYME DISEASE?
Lyme disease is a bacterial infection mainly transmitted by insects, particularly ticks. It can affect the head, face, neck, eyes, vision, hearing, digestive, musculoskeletal, respiratory and neurological systems, as well as mental capability, psychological and general well-being.

Lyme disease is know as 'the great imitator' as it mimics the symptoms of 100's of other illnesses such as Chronic Fatigue Syndrome, Multiple Sclerosis, Parkinson Disease, ALS and Lupus. The disease has been described by Dr. Neil Spector, oncologist at Duke University in USA as 'the infectious disease equivalent of cancer'.

Tragically, Lyme Disease is yet to be recognised in Australia. Doctors lack information about the disease and it can often go undiagnosed for years. If not treated early on, the bacteria can lock into the brain and other organs and devastate the body's immune system. Treating the disease becomes increasingly complicated and expensive.

For more information on Lyme Disease in Australia visit http://www.lymedisease.org.au/about-lyme-disease/late-stage-lyme-disease/ 
and 
http://monthlychronicle.com.au/2016/05/09/the-hell-of-lyme/

Em has suffered from Lyme Disease for most of her life. The disease is now very advanced and she continues to get worse.
She needs advanced, comprehensive treatment that  isn't available in Australia.
  

EM'S SUFFERING 
Em has suffered in silence for most of her life. Her pain, fatigue, neurological issues and impaired vision have impacted her ability to function.
With no answers from the 100's of doctors she saw, she learnt to manage her symptoms and worked hard to stay on top of things. Although she missed 70% of her secondary education, due to illness, she still managed to go to university. Her health continued to decline to the point that she became bedridden and had to stop working and studying. She's spent most of her 20's writhing in horrific pain.

In 2015 Em was finally diagnosed with Lyme Disease. She underwent a year of treatment and began to improve. But the treatment failed, which is common with advanced Lyme Disease, and her health rapidly deteriorated.

Em struggles every day. She's bedridden and so weak she finds it difficult to walk without a walker to get to the bathroom or kitchen. She needs a wheelchair if she has to walk for more than a few minutes and her body pain and headaches intensify if she sits upright. She spends days on end dealing with nausea and vomiting and she wakes screaming in unbearable pain at all hours of the night.

She's totally dependent on others to do basic daily tasks. I help her to bathe and dress, I prepare her meals, wash her clothes, organise her many medications and drive her to appointments. Em only leaves the house to go to medical appointments. She lives in a darkened room to avoid the intense pain that even the smallest amount of light causes. She can't finish her degree, can't go out on weekends or even to a cafe. Em's main concern is her health. For years she's worked hard to do everything possible to get better and get her life back.

Treatments offered in Australia's have been unable to help her. Her case is very severe. It's critical that she gets immediate help.


                                                 But there is hope.


TREATMENT IN SWITZERLAND
A world-class residential clinic in Switzerland can give Em the help she needs to get better. Paracelsus Clinic has a reputation for successfully treating Lyme Disease. Over 80% of patients return to work within months of receiving treatments. They combine diagnostic and therapeutic methods to focus on repairing the body's ability overcome infections and beat Lyme Disease. After patients leave the clinic they can continue treatment working with their own doctor in conjunction with the clinic. The live-in facility would enable expert doctors to provide Em with intensive medical treatments and closely monitor her progress.

Treatments include VNS analysis, which addresses nerve damage and the effect it has on organ function, IV infusions for rapid and intensive effect in administering medications, Hyperthermia therapy, where the body temperature is increased to promote the activity of white blood cells, Microimmune therapy, which stimulates a weak immune system and allows the body to fight viral and bacterial diseases and Hyperbaric and IV ozone therapy, which raises the level of oxygen in the blood to help fight disease. 

Comprehensive testing and monitoring is provided throughout the treatment as well as supportive counseling. For more information visit https://www.alronc.com/ 



COSTS
Paracelsus Clinic is a world-class medical centre. This is reflected in the costs. I support Em financially and as a school teacher will find it impossible to cover all the costs. I am using the equity of my home to help save Em but this is not enough to cover the length of treatment she needs. 

* $10,000 - flights for Em and myself
* $41,300 - flights plus 4 weeks treatment
* $58,000 - flights plus 6 weeks treatment
* $80,800 - flight plus 9 weeks treatment
* $105,000 - flights plus 12 weeks treatment


OUR HOPE
Em wants to live again. I want her to enjoy her independence and her life and do the things she loves. It would be wonderful if she could achieve the things she now can only dream of. She wants to return to study and work and live without this dreadful disease robbing her of life. She wants to give back to those around her and help other people. I know that with her drive and talents, given this chance, Em will go far.




YOU CAN HELP
Please support Em. Help her get the treatment she needs.
Make a donation. Every amount, large or small, will help save Em.

Share to raise awareness. You can raise $30 JUST BY SHARING on your social media! 



Like the Save Em Facebook page here for regular updates.

Contact us with questions, fundraising ideas or items to donate:  [email redacted]

Please share this page and donate to help Save Em.

Thank you so much for your love and support!

Donations 

  • Julien Schnitzler
    • $150
    • 6 yrs

Organizer

Leanne Knight
Organizer
Beecroft, NSW

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