Saving Army Veteran and Streamer from Brain Cancer

Hi everyone,

Loving husband, father, son, and veteran, Zach Hahn AKA FlaccidBaron AKA the love of my life, has been battling brain cancer since December 2020. It started as a small brain bleed that was dismissed as just that, and since he was 26 at the time, the doctors said we had to wait for the swelling to settle to get more imaging. One month later we moved to Tampa and had appointments lined up. Three days after settling in, I put our 3-month-old to bed, then went to check on Zach but found him on the floor seizing up, this seizure left him in a week-long coma.

He had an emergency craniotomy in January '21 at Advent Health where his bone flap was removed to allow the brain space to reduce swelling. The bone flap was to be re-attached at a later time, he even underwent a plastic surgery procedure months later where they added a balloon on his head to expand the skin so that when the bone flap was reattached it would seal properly. A year later we found out through Moffitt that Advent Health discarded his piece of skull 3 weeks after the initial emergency surgery and we were not notified. We tried pursuing legal action but have been turned down by multiple legal agencies so I stopped pursuing that and just took the L.

He was in physical and speech therapy until the end of February where he was discharged after showing progress. However, in April '21 his symptoms started to get worse and I took him to the ER where an MRI showed a tumor. The biopsy later showed he has a rhabdomyosarcoma. The lady giving us the news said they didn't have much information about it, but we were free to google it.

In May '21 he began receiving care at Moffitt Cancer Center where he underwent a total of 3 rounds of radiation, 4 different chemotherapies, and two brain surgeries. During the last brain surgery in December '22, the neurosurgeon said he could not perform any additional surgeries because it'll cause more harm than good since the tumor kept returning and other methods were not showing improvement. So he underwent more radiation and chemotherapy which left him weak and exhausted. Still, he persevered and continued to do what he loves which is content creation on Twitch and Youtube. We tried to get a second opinion from the doctors at the VA or for them to refer us to a different doctor (insurance, thanks america) but they booked it months out. It was Scheduled for July 18.

This year we have gone to urgent care more times than I can remember. During a March visit, the nurse held my hand and told me that would be the end and all we could do was help him transition. A few hours later the neurosurgeon said that the scans were only showing inflammation and that some dexamethasone would help him and he was good to go home. This became our normal and has more scans and doctor visits at the beginning of July. However, after an Urgent Care visit at Moffitt, they showed the MRIs where the tumor has grown about 5 times in size over a month. They suggested hospice care, but we refuse to give up.

He is eating and drinking liquids again. He is refusing to take the medications that the hospice has given him. He still hugs and high-fives our 2-year-old son. He will not give up, and neither will I.

I have sent messages and left voicemails at many institutions across the country, even one in Lebanon. I am hoping someone will agree to perform one last emergency surgery. This will very costly since it would not be covered by insurance, and we don't even have time to wait for insurance approvals. I am so tired of being on the phone waiting on approvals as my husband is slowly dying from the pressure in his brain... this is where I ask for your help. Many members of his online community have reached out hoping to help financially and he has friends everywhere. The man has rizz for days.

I hope this all made sense. i am a mess. thank you.