Saving Sadie. Neuromuscular Disease

A few months back, it was feared that Sadie was facing a life with cystic fibrosis. While progress had been seen initially to steer away from that, this quickly changed two days before Christmas. Sadie was aspirating when taking a bottle and had been unable to gain weight. She was taken to Wake Forest Baptist Medical Center. During a test before inserting the feeding tube, it was determined that Sadie has Spinal Muscular Atrophy Type 1. Most children that are faced with this diagnosis do not live past the age of two. This comes with an outlook of many hospital visits, medical supplies and a limited life expectancy. Sadie's mother, Logan, is seeking alternative treatments in New Jersey from Dr. Bach that specialize in gene therapy and isolating the SMN1 gene that have given Sadie this fatal deterioration of her muscles. Currently, Sadie is fighting RSV pneumonia and is awaiting the all clear to go home and begin her travels north.  Sadie is six months old and needs to have a long life ahead of her. Please help Sadie fight for her life.