Scott Willett's battle with ALS
Donation protected
Dearest family and friends of Scott Willett
In January of 2017, Scott Willett was diagnosed with Lou Gehrig’s Disease, more commonly known as ALS (amyotrophic lateral sclerosis) He is only 53 years old.
ALS is a progressive disease where muscle tissue in the body slowly dies causing increased paralysis over time. Patients with ALS lose the ability to swallow, breathe, and move. The person’s mind usually remains unaffected so patients are painfully aware and are left watching their body degrade. ALS is fatal. Patients typically live 3 to 5 years after diagnosis. There is no current cure for ALS.
The struggle started 6 years ago when he was diagnosed with motor neuron disease. Since receiving the diagnosis of ALS our family has watched in despair as he’s adjusted to living with this awful disease.
Our family has desperately wanted to help by creating a GoFundMe account but have been a loss for words and unsure of what to say in this situation.
This disease has radically changed Scott’s life. He no longer has the ability to work and support his family. His main concern at this point is no longer being able to provide for his family. Scott will leave behind a wife and three children that are still dependent on him.
Michaela, age 20, is a student at Kettering University studying Chemical Engineering. Courtney, age 18 studying at Wayne State University, and Heather, his youngest, age 11 who has down syndrome. They are bright, hard working students who love their dad very much and will feel this devastating loss for the rest of their lives.
The time has come that we really need to ask for help with some of the final stages of his life.
Scott and Steph have had to make adjustments necessary for him to function in their home. Transportation has become an issue. He does have a wheelchair but they do not currently have a car that can transport it.
The biggest unknown is future medical expenses and a full time caregiver. Stephanie is currently doing her best to work full time and provide the care he needs from their home since he can no longer be left alone.
It is difficult to determine when he will need a full time caregiver and amount of time he will. There are so many expenses included in this illness that we aren’t currently aware of.
We are setting his donation amount at $1 due to financial needs being unknown to us. Any Contribution made will be greatly appreciated and extremely helpful. Scott’s birthday is November 16th, we are hoping to present this to him as a gift, so please share this with everyone you can but please don’t mention it to Scott or Steph!
If you ever knew Scott Willet, then you know that he was always a mountain, of a man and in spirits he still is. Even after this diagnoses he has remained a pillar of strength in our family.
We would ask that everyone reading this would join our family in prayer for his healing. Our family has prayed for him constantly since he received this diagnosis. We do NOT believe this illness is a punishment and understand that our answer to the prayer of healing isn’t always what we want it to be.
If you would like to send a check or if you have any other questions feel free message us through go fund me.
Thank you so much from the bottom of our hearts to yours.
In January of 2017, Scott Willett was diagnosed with Lou Gehrig’s Disease, more commonly known as ALS (amyotrophic lateral sclerosis) He is only 53 years old.
ALS is a progressive disease where muscle tissue in the body slowly dies causing increased paralysis over time. Patients with ALS lose the ability to swallow, breathe, and move. The person’s mind usually remains unaffected so patients are painfully aware and are left watching their body degrade. ALS is fatal. Patients typically live 3 to 5 years after diagnosis. There is no current cure for ALS.
The struggle started 6 years ago when he was diagnosed with motor neuron disease. Since receiving the diagnosis of ALS our family has watched in despair as he’s adjusted to living with this awful disease.
Our family has desperately wanted to help by creating a GoFundMe account but have been a loss for words and unsure of what to say in this situation.
This disease has radically changed Scott’s life. He no longer has the ability to work and support his family. His main concern at this point is no longer being able to provide for his family. Scott will leave behind a wife and three children that are still dependent on him.
Michaela, age 20, is a student at Kettering University studying Chemical Engineering. Courtney, age 18 studying at Wayne State University, and Heather, his youngest, age 11 who has down syndrome. They are bright, hard working students who love their dad very much and will feel this devastating loss for the rest of their lives.
The time has come that we really need to ask for help with some of the final stages of his life.
Scott and Steph have had to make adjustments necessary for him to function in their home. Transportation has become an issue. He does have a wheelchair but they do not currently have a car that can transport it.
The biggest unknown is future medical expenses and a full time caregiver. Stephanie is currently doing her best to work full time and provide the care he needs from their home since he can no longer be left alone.
It is difficult to determine when he will need a full time caregiver and amount of time he will. There are so many expenses included in this illness that we aren’t currently aware of.
We are setting his donation amount at $1 due to financial needs being unknown to us. Any Contribution made will be greatly appreciated and extremely helpful. Scott’s birthday is November 16th, we are hoping to present this to him as a gift, so please share this with everyone you can but please don’t mention it to Scott or Steph!
If you ever knew Scott Willet, then you know that he was always a mountain, of a man and in spirits he still is. Even after this diagnoses he has remained a pillar of strength in our family.
We would ask that everyone reading this would join our family in prayer for his healing. Our family has prayed for him constantly since he received this diagnosis. We do NOT believe this illness is a punishment and understand that our answer to the prayer of healing isn’t always what we want it to be.
If you would like to send a check or if you have any other questions feel free message us through go fund me.
Thank you so much from the bottom of our hearts to yours.
Organizer and beneficiary
Stephanie Saintmarie
Organizer
Flint, MI
Stephanie Willett
Beneficiary