Seek travel assistance & co-pays for NF Surgery.

Hi, I'm Libby!

I was born with an unpredictable, progressive, genetic, NEUROLOGICAL DISORDER ("Neurofibromatosis") that causes tumors to develop on top of anywhere that I have a nerve ending.

This causes my nerve ending NF tumors ("fibromas") to "push upward" from BENEATH of the skin surface and NOT actually "on top of" my skin.

There is currently no cure for NF but researchers for NF are always trying to find ways of stopping the progression of the disorder through clinical trials.

As of 2024, I have participated in three different trials but so far, I haven't had any success but I don't let that stop me from finding other clinical trials for NF to participate in.

My fingers are crossed in hopes of finding an opportunity to participate in an NF trial using the gene-editing therapy known as CRYSPR.

So far, there has not ever been a trial created using CRYSPR to treat adults or children born with NF, but I patiently wait with optimism the chance to arise.

Because NF is a "neurological disorder", it CAN often be painful both physically & mentally as well also cause extremely itchy nerve endings.

I am seeking financial assistance to help pay for co-pays, premiums, and my travel expenses for my repeated NF Tumor Removal Electrodessication Surgeries performed by a highly reputable & passionate NF Surgeon, Dr. Andre Panossian in Pasadena, California.

These surgeries alleviate a great portion of the regular pain that I experience on a daily basis by removing hundreds of my tumors ("neurofibromas", 'bumps') from my body in only a couple of hours.

Overall recovery with having the Electrodessication surgery is about two months.

Patients will usually experience a mild, annoying, burning-like sensation during the healing phase most always will come with a lot of itchy nerve endings.

(If you're having this surgery, ask for hydroxyzine 50mg tablets for as needed. You'll definitely thank me later.)

I always look forward to amazing & positive results because the surgery always improves my overall quality of life since NF has always had this unpleasant way of severely impacted by overall health.

I am a HUGE advocate for raising much needed awareness for Neurofibromatosis and have just under 14,000, NF members worldwide in my Facebook group ("Faces of Neurofibromatosis") who also live with this common birth disorder that hardly anyone has ever heard of, including many medical professionals.

They believe that NF affects approximately 1 in every 2,500 individuals worldwide.

I've been arguing those statistics for a number of years because I know for certain that there are so many more NFers in this than what they realize.

Many NFers will avoid doctor visits because there are far too many of them who know nothing about NF.

A lot of NFers have never been officially diagnosed with NF and there are definitely a lot of people who don't even know that they have NF.

I have been a major influencer for NF AWARENESS ADVOCACY.

I am always trying to encourage other NF'ers join me in the movement to educate & prove the much greater need for more NF Physicians & treatment options for NF available on a global level by increasing the awareness by showing the FACES of neurofibromatosis.

I love helping & supporting the NF Community and always reminding everyone that they are NOT alone living with their NF!

Opportunities like this can make such a remarkable difference in the lives of people who were born with NF.

I REMAIN POSITIVE for the future of NF & every upcoming advances & opportunities in the medical industry.

NF needs MORE TREATMENT OPTIONS worldwide!

I thoroughly appreciate all and any support that you have to offer to me during this time. Your kindness will not go unnoticed and I promise to provide all of my supporters with regular updates of my surgical process.

Thank you ever so much for your kindness & generosity.

Have a grateful day and always remember...

"If We're Not Seen, We Can't be Heard."