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Send Stevie to Italy for CRPS Treatment

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Stevie suffers from complex regional pain syndrome (CRPS), a rare and unusual condition that has been dubbed 'the suicide disease'.

The condition is a neurological malfunction of the central nervous system that results in burning, stabbing, shooting and throbbing pain.

For Stevie the intense pain is in her feet, both legs, lower back, forearms and jaw 24 hours of every day seven days a week without any kind of break.

You can’t genuinely comprehend it.  It affects your sanity and is completely and utterly overwhelming, not just physically but mentally and emotionally.

Forty per cent of CRPS sufferers end up taking their own life because of the never-ending agony, according to estimates.

Although most cases of CRPS are triggered by an injury, the resulting pain is much more severe and long-lasting than normal.

The pain usually only affects 1 limb, but it can sometimes spread to other parts of the body. (Stevie’s CRPS started in her left foot when she broke it playing basketball and then spread to both feet, both legs, her lower back, forearms and left jaw/tongue.)

The skin of the affected body part can become so sensitive that a slight touch, bump or even a change in temperature can cause intense pain.

Affected areas can also become swollen, stiff or undergo fluctuating changes in color or temperature.

It is a very cruel thing. It beats you and crushes you and reduces you to zero and below. There is no cure and she will have it until the day she dies.

Italy has a treatment that isn’t approved in the USA. She has a really good chance of putting her CRPS into remission if she goes  Time is of the essence so the sooner she gets treated, the better her chances of remission.  We need to be there for a course of 10 days with a total of 4 Neridronate Infusions.  This is not a cheap treatment but her life is worth it and we are asking for any and all help to get her there as soon as possible. Thank you from the bottom of a mother’s heart ❤️.
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Donations 

  • Anonymous
    • $100
    • 5 yrs
  • Melissa Graton
    • $50
    • 5 yrs
  • Teresa Christensen
    • $150
    • 5 yrs
  • Lisa Reddish
    • $50
    • 5 yrs
  • Anonymous
    • $50
    • 5 yrs
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Organizer

Becky Orton
Organizer
Gilford, NH

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