Shay's "being sick SUCKS" fund
Donation protected
I'm going out of my comfort zone and needing the support of family and friends. I feel like at this point I don't have much to lose and I just want my life back.
Since July 19, 2017 my life was completely changed. I haven’t talked about it much because I don’t like to burden people or ask for help. However, that day I became very sick out of no where. I spent my days trying to make it through work while seeing every specialist’s possible to figure out what was going on with me. After months of trying I was hospitalized and after multiple tests no one could really tell me what was going on with me and I ended up with another referral to another doctor. After researching myself I finally asked for a referral to Stanford. I have currently been seeing multiple doctors there and have been diagnosed with Myasthenia gravis https://www.mayoclinic.org/diseases-conditions/myasthenia-gravis/symptoms-causes/syc-20352036 and Postural Orthostatic Tachycardia Syndrome http://www.dysautonomiainternational.org/page.php?ID=30. It has affected me physically, mentally and emotionally and I know now that I need support. My treatment hasn’t been very successful and I have constant anxiety because I never know how bad each day will be. I’ve been very down because I can’t do things for my kids or really anything that I was once able to do. I am not longer able to work and because of this I lost my insurance. After more research I found a doctor in Arizona, https://www.nemechekconsultativemedicine.com/, who is a specialist with my disorders! Finally! Some hope! The catch is i will need to self pay for the office visits and fly back and forth which is hard to do without any income. I see so many people always talking about reaching out if you need help, so I’m swallowing my pride and asking friends and family to please help me through this difficult time. Anything helps and is greatly appreciated.
Since July 19, 2017 my life was completely changed. I haven’t talked about it much because I don’t like to burden people or ask for help. However, that day I became very sick out of no where. I spent my days trying to make it through work while seeing every specialist’s possible to figure out what was going on with me. After months of trying I was hospitalized and after multiple tests no one could really tell me what was going on with me and I ended up with another referral to another doctor. After researching myself I finally asked for a referral to Stanford. I have currently been seeing multiple doctors there and have been diagnosed with Myasthenia gravis https://www.mayoclinic.org/diseases-conditions/myasthenia-gravis/symptoms-causes/syc-20352036 and Postural Orthostatic Tachycardia Syndrome http://www.dysautonomiainternational.org/page.php?ID=30. It has affected me physically, mentally and emotionally and I know now that I need support. My treatment hasn’t been very successful and I have constant anxiety because I never know how bad each day will be. I’ve been very down because I can’t do things for my kids or really anything that I was once able to do. I am not longer able to work and because of this I lost my insurance. After more research I found a doctor in Arizona, https://www.nemechekconsultativemedicine.com/, who is a specialist with my disorders! Finally! Some hope! The catch is i will need to self pay for the office visits and fly back and forth which is hard to do without any income. I see so many people always talking about reaching out if you need help, so I’m swallowing my pride and asking friends and family to please help me through this difficult time. Anything helps and is greatly appreciated.
Organizer
Shay Jones
Organizer
Reno, NV