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Show my sightimpaired daughter the world

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Hi, my name is Emma and I have the most amazing 11 year old daughter Lily-Rae who was diagnosed with juvenile macular dystrophy last year with confirmation a few weeks ago that she has a “defective” (hate that term!) abca4gene which is really rare and has caused her to have Stargardts disease. She has started using a cane and learning braille as her sight is constantly deteriorating she will hopefully keep some of her peripheral vision but that’s not 100%. I’ve been gathering her ideas and the things she wants to see before it sadly gets so bad!
Top of Lily-Rae’s list is experiencing the northern lights in a glass dome. We’d appreciate anything you can spare to make Lily’s dreams come true and she can have that vision memory in her mind forever x
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Donations 

  • Anonymous
    • £25
    • 1 mo
  • martin tandy
    • £10
    • 1 mo
  • Nadia Whittome
    • £20
    • 1 mo
  • Graham Wassall
    • £100
    • 2 mos
  • Anonymous
    • £15
    • 2 mos
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Organizer

Emma Merchant
Organizer
England

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