Simun’s road to recovery

Dear friends, acquaintances, relatives, all people of good heart!

This is Simon, our third child, our MIRACLE ...

Šimun was born with spina bifida meningomyelocele (spinal cleft) and was operated on when he was less than 2 months old. Nerve damage in the lower back has led to the diagnosis of an overactive neurogenic bladder and we catheterize it 5-6 times a day as well as to problems with constipation which we solve by forcibly emptying it. He was also born with numerous bone malformations (he lacks over 25 bones - the spine and mostly the limbs of the legs) which prevent him despite a great struggle and the desire to stand stably and independently on his feet. In addition, he has problems with strabismus, undescended testicles for which he would have surgery at the age of five. Earlier this year, at a regular MRI check in the lower part of Simon's spine, two growths were found that were growing rapidly and involved the nerves and blocked them along the spine. After returning from treatment in America, Šimun will have an operation in Croatia where the same creations will be removed from his spine in order to release the nerves that are entangled in them. Simon is 11.05.2021. had his first epileptic seizure, which recurred several times in just a few days, and was therefore placed on additional therapy with drugs to prevent epilepsy. We are currently here in America looking for a doctor to control epilepsy during our stay here. In early June 2021, we came to America for scheduled surgery where two weeks ago Simon had his left hip operated on and had extensive left foot surgery which they stabilized and made as functional as it could be given that a lot of bones are missing. We were given the opportunity for treatment at an American hospital in Florida, Miami (West Palm Beach), where Dr. Paley, with the assistance of other doctors, operated on Simon for the second time. In the first operation in 2019, Šimun had his left leg amputated above the knee and a duplicate bone in his left hip was removed, and his right foot was joined because it had a cleft (only two toes). The treatment lasted just over seven months in America, and the treatment we are on now is estimated to be 5-6 months. This way we ask you all for help, through a struggle that has been going on for three and a half years we are financially exhausted. Covering all expenses is unattainable and unimaginable with our income, and without the help of family, friends and you good people, we will not succeed. His struggle is still at the very beginning, no matter how hard it is for us to admit it, and our stay during treatment in America, frequent visits to long-distance examinations, with certain medical supplies that we finance ourselves, with two other children is unthinkable without your help.

Thank you all in advance for being a part of our struggle ❤️, our family… And please, if you can't help financially, share our fast and mention Simon in your prayers ...

More about Simon and updates about his condition you can find us on FaceBook page:

 Za Šimunov