Sinead and Brenda take to the skies for CPARF

Please sponsor our Skydive with ukskydiving.com. The jump has been self-funded - CPA Research Foundation will receive 100% of all money raised.

 

In 2018, my daughter was diagnosed with Cerebral Proliferative Angiopathy (CPA) - a rare, incurable brain disease. My mum, Brenda, and I are doing this skydive on Wednesday 3 November 2021 to raise awareness and funds for the much needed research into the condition.

 

CPA is where normal brain tissue is trapped within a network of abnormal capillaries, causing patients to live with Stroke like symptoms. Its diagnosis currently sits under the umbrella of a brain Arteriovenous Malformation (AVM) and has been diagnosed in the past as a large diffuse AVM. However, it is thought that only 3.4% of brain AVM patients are diagnosed as having CPA.

 

Currently, there are no known activities being undertaken to develop much needed therapies to control it and officially classify it as a separate disease - giving it a voice. Therefore, it is CPA Research Foundation's mission to establish themselves as the number one global charity for CPA research and awareness.

 

Please help us raise the much needed funds to put this condition on the map!

For more information visit www.cparfoundation.org