Siren's Memorial Fund❤️

The life of Siren and fund for her final resting place
My dear younger sister Siren past away on the 12th January after 8 years fighting heart problems.
She was unbelievable strong, with so many dreams. Her long journey began when she was only 13. It did not take more than two weeks from finding out that her heart was failing until she had to go through a full heart transplantation. I will always be amazed with how a 13-year-old little girl managed to cope and find the spirit to fight. The recovery after the operation was long and hard. She could barely walk more than 10 meters without losing her breath. During this period of time there were many times where she just wanted to give up, but with time she got better and started to dream big again.
Her dream was to study Business & Finance, so that she could start up her own company and no matter how unbelievable it may have sounded she began her journey
- even though she was in and out of the hospital…
- she would sometimes fall 6month behind school because of the hospital visits,
- even her teachers sometimes told her to quit because she was behind
- it was even hard for her to work in a group at school… there are days where Siren might not be able to leave the house because she is simply too tired… yet in their eyes she’s not dedicated and for that exclude her but this did not break her, we all know the saying and yes it just made her 10 times stronger.
She would cry for some days but never ever give up.
One of her biggest uphill battles was when she was looking for an internship. All the companies except for one turned her down, not because she did not have the personality or skills, but because they were to afraid to employee someone with heart problems so the joy she felt for the job she got is indescribable. It was during the same period she also decided to really think about starting her own company. Since she was a night person she would spend the entire night working on finding suppliers, asking for samples and quotations, creating new designs, logo and how her homepage should look like. She had an entire checklist of things that needs to be done to launch a company all these while dealing with being a heart transplant patient.
The most embarrassing thing for her was not her falling down while trying on a pair a high heels for the first time (btw funniest thing ever!) but it was the first time she fainted after getting the internship that got the honour. Siren was so angry with herself for ending up on the ground and back into the hospital but she also felt like she had let her boss down since they believed in her by giving her this opportunity. She was also ashamed for being forced by the doctors to cancel the trip to Sweden, to celebrate Christmas with me. I cannot remember how many times she apologized to me because she was not allowed to fly. To give you an example of text from her when she is embarrassed:
“My body has a habit of collapsing on road. Getting on my nerves now. It’s fucking embarrassing. I’m so irritated now, I won’t even get paid”
Sadly enough by the age of 21 (having just turned 4 months prior) she didn’t survive her last collapse. After 8 long, gruelling, sweat and tears my baby sisters heart gave up.
I cannot express the emptiness, the void she has left in my and my familys heart and the sadness it brings when she only had 1 more year of Uni, I mean…..GIRL DONE GOOD. With all the burdens, she had she mastered them and still wanted to stand tall no matter what.
The pain you feel when one of your siblings or even your own child leaves this earth, leaves you…is indescribable and such a great loss that you can never prepare yourself for. There were so many times I think Siren knew she was going to die young and there were a few clothes ones…just those phone calls they would come once in a while but it they never did prepare me for what happened on the 12th January….
Looking in the rear-view mirror I can see that Siren was a fighter. She had all the odds against her, from her body to the society who worked against, but still did she not give up until the bitter end of the age of 21. This is something I will take with me, when I think my life is a bit hard. If a 21-year-old girl can do it against all odds, why can’t I, who have all the pre-requisite.
Do see one of her company presentation, to understand the will of not giving up.
https://youtu.be/qwi67oiiUto
Since no insurance company wanted to insure a girl with hearth issues have we now started a fund for her. The money will go to transporting her to Sweden, which is the country she was born in and wanted to be buried in in a beautiful white casket surround with people that loved her and everything about her, I even think she told mum was that she didn’t want us to cry for her but to remember all the good things and not dress in black.
A small part of the fund will go my mother, so that she can take some time of to be able to grieve and embrace the lost of her child.