Sky Rising
Donation protected
Hi Friends,
We created this Go Fund Me account to help our dear friends, Rich and Angela Durant as they care for their daughter Schuyler (Sky) who continues to experience Childhood Post-infectious Autoimmune Encephalopathy(CPAE). The immune triggers for this illness were COVID exposure in the home and the COVID vaccines. Since her treatment in Tucson (from September until November), it was investigated and discovered she also has ongoing tick-borne infections, that are exacerbating the autoimmune response. This explains why she did not respond as robustly as hoped, to the three rounds of IVIG therapy she received at the hospital in Tucson.
Sky has been in treatment for these infections since the beginning of February, and in the meantime her parentshave been trying to organize her care for the next step in treatment, to resume IVIG to modulate her immune system. Sky is also currently receiving speech therapy and physical therapy in her home, as well as meeting withother consulting providers in outpatient visits.
Thankfully, Sky is scheduled to resume IVIG treatment on May 16th & 17th in an outpatient clinic. As it stands, theirhealth insurance plan has denied coverage for this service. Sky’s parents have worked tirelessly to appeal to get these resuming treatments covered, with no luck. Sky will also need rehabilitation services as she recovers from CPAE, to regain functions that have been impaired by thisillness.
Some things we think you should know about our Sky. She is a fun-loving old soul with a contagious smile and sense of humor. She cares deeply about her friends, her family, and people in this world who are vulnerable. She is justice-oriented, and vigorously defends and advocates for people she cares about. We have watched her grow into a wonderful young member of our community. She has a love for art, music, nature, science, and humanity. With your help we are hopeful we can get Sky back to her flourishing baseline, where she deserves to be.
This Go-Fund-Me will provide financial assistance for travel and medical expenses for Sky's care. Each IVIG infusion is around $20,000. At this time, this treatment will not be paid for by insurance. This is an incredibly difficult time for Sky and her family and contributing to this Go-Fund Me is a way to help.
We created this Go Fund Me account to help our dear friends, Rich and Angela Durant as they care for their daughter Schuyler (Sky) who continues to experience Childhood Post-infectious Autoimmune Encephalopathy(CPAE). The immune triggers for this illness were COVID exposure in the home and the COVID vaccines. Since her treatment in Tucson (from September until November), it was investigated and discovered she also has ongoing tick-borne infections, that are exacerbating the autoimmune response. This explains why she did not respond as robustly as hoped, to the three rounds of IVIG therapy she received at the hospital in Tucson.
Sky has been in treatment for these infections since the beginning of February, and in the meantime her parentshave been trying to organize her care for the next step in treatment, to resume IVIG to modulate her immune system. Sky is also currently receiving speech therapy and physical therapy in her home, as well as meeting withother consulting providers in outpatient visits.
Thankfully, Sky is scheduled to resume IVIG treatment on May 16th & 17th in an outpatient clinic. As it stands, theirhealth insurance plan has denied coverage for this service. Sky’s parents have worked tirelessly to appeal to get these resuming treatments covered, with no luck. Sky will also need rehabilitation services as she recovers from CPAE, to regain functions that have been impaired by thisillness.
Some things we think you should know about our Sky. She is a fun-loving old soul with a contagious smile and sense of humor. She cares deeply about her friends, her family, and people in this world who are vulnerable. She is justice-oriented, and vigorously defends and advocates for people she cares about. We have watched her grow into a wonderful young member of our community. She has a love for art, music, nature, science, and humanity. With your help we are hopeful we can get Sky back to her flourishing baseline, where she deserves to be.
This Go-Fund-Me will provide financial assistance for travel and medical expenses for Sky's care. Each IVIG infusion is around $20,000. At this time, this treatment will not be paid for by insurance. This is an incredibly difficult time for Sky and her family and contributing to this Go-Fund Me is a way to help.
Fundraising team (3)
Lauren Crowl
Organizer
Keene, NY
Richard Durant
Beneficiary
Angela Durant
Team member