Skylar's Journey with Cystic Fibrosis
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Skylar Maddox Favor was born August 28th, 2020. She is the youngest daughter of Rhonda and Brad Favor. It was discovered she may have something wrong when she didn't pass one of her newborn tests. She wasn't having bowel movements and her oxygen was low. This sweet baby's belly swelled into a size 3 diaper before they took her into surgery. She has had a total of 2 surgeries removing 5" of her intestine leaving her with a ileostomy bag (for now). It has been determined that Skylar has Cystic Fibrosis. This was a surprise as no one on either side of their families knew of anyone who had this and their other 2 children were born perfectly healthy.
What is Cystic Fibrosis? "It is a genetic disorder that affects mostly the lungs, but also the pancreas, liver, kidneys, and intestine. Long-term issues include difficulty breathing and coughing up mucus as a result of frequent lung infections. Other signs and symptoms may include sinus infections, poor growth, fatty stool, clubbing of the fingers and toes, and infertility in most males. Different people may have different degrees of symptoms."
We know that Skylar will need another surgery when it is determined she no longer needs the ileostomy bag. Once she is able to leave the hospital she will visit the doctor weekly for the 1st year. We believe Skylar will get to do all things every other child and adult is able to do but because of cystic fibrosis she will face unknown related health issues along with needing to be on enzymes, vitamins, and other medications for the rest of her life.
Skylar has entered into her 2nd month in the hospital. She has yet to go home or meet her big sister Kenzi and brother Rhys. Once coming home and if Skylar still has her ileostomy bag Rhonda doesn't know if she will be able to work the hours she once did in order to give Skylar the proper care needed. As you can imagine the Medical Bills have started coming in and the reality of the financial strain is being felt. Any support you could give to this family would be appreciated beyond measure.
What is Cystic Fibrosis? "It is a genetic disorder that affects mostly the lungs, but also the pancreas, liver, kidneys, and intestine. Long-term issues include difficulty breathing and coughing up mucus as a result of frequent lung infections. Other signs and symptoms may include sinus infections, poor growth, fatty stool, clubbing of the fingers and toes, and infertility in most males. Different people may have different degrees of symptoms."
We know that Skylar will need another surgery when it is determined she no longer needs the ileostomy bag. Once she is able to leave the hospital she will visit the doctor weekly for the 1st year. We believe Skylar will get to do all things every other child and adult is able to do but because of cystic fibrosis she will face unknown related health issues along with needing to be on enzymes, vitamins, and other medications for the rest of her life.
Skylar has entered into her 2nd month in the hospital. She has yet to go home or meet her big sister Kenzi and brother Rhys. Once coming home and if Skylar still has her ileostomy bag Rhonda doesn't know if she will be able to work the hours she once did in order to give Skylar the proper care needed. As you can imagine the Medical Bills have started coming in and the reality of the financial strain is being felt. Any support you could give to this family would be appreciated beyond measure.
Organizer and beneficiary
Holly Goforth
Organizer
Lebanon, MO
Brad Favor
Beneficiary