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Skylynne Bogaski

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Skylynne Bogaski is my 7 month old niece, she has Spinal Muscular Atrophy...Skylynne was born 11/23/16 her parents are my brother Joe & his wife Robin.  When Skylynne was born she was in flatline distress which is Hypo tonia, last week at 7 months she was at the doctors told Joe & Robin to get her to the hospital after a 1/2 hour in ER doctors told Joe & Robin she had Mutation of Resptory System & Muscles.  Doctors also told them no child lives past 2years of age...The only hope if you can call it that is a experimental shot that is given 2 times a month at 150.000 a shot no one can afford that.so our family Is starting a go find me page with the hope of raising money to help, I can't express the urgency of this, Please if you can help in anyway our family & especially Skylynne will be forever greatfull.  Thank You from the whole Bogaski Family
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    Organizer and beneficiary

    Kathy Bogaski McKibbin
    Organizer
    Las Vegas, NV
    JOSEPH BOGASKI
    Beneficiary

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