Smiles for Seda!
Donation protected
Dear Friends & Family,
My 19-month-old Niece, "Seda Bear," as I affectionately call her, was diagnosed with a very rare type of Epilepsy that surprised her family on Christmas 2019. Since that time, Seda has had countless EEGs, MRIs and PET Scans.
Seda’s already won many of her battles: a surgery to help her eat, steroids that took her smiles away for months, and physical therapy every week for a year. Tomorrow she will be going through her biggest battle yet: a Hemispherectomy, which is a brain surgery that will hopefully change her life.
My brother and his wife are doing all they can to get Seda the therapies that will help her reach her potential and keep those smiles coming. Unfortunately many of the expenses and treatments are not covered by insurance and while Seda has been a rock star, she’s got a long journey ahead.
I’ve created this GoFundMe as a way for us to support Seda and her parents through their journey and to provide a direct way to help. Your donations, whatever you can give, will go a long way to helping Seda live her best life.
Please join Todd and Kelsey’s support team in any way that you can. Every positive thought and prayer is incredibly valuable to them and our family.
My 19-month-old Niece, "Seda Bear," as I affectionately call her, was diagnosed with a very rare type of Epilepsy that surprised her family on Christmas 2019. Since that time, Seda has had countless EEGs, MRIs and PET Scans.
Seda’s already won many of her battles: a surgery to help her eat, steroids that took her smiles away for months, and physical therapy every week for a year. Tomorrow she will be going through her biggest battle yet: a Hemispherectomy, which is a brain surgery that will hopefully change her life.
My brother and his wife are doing all they can to get Seda the therapies that will help her reach her potential and keep those smiles coming. Unfortunately many of the expenses and treatments are not covered by insurance and while Seda has been a rock star, she’s got a long journey ahead.
I’ve created this GoFundMe as a way for us to support Seda and her parents through their journey and to provide a direct way to help. Your donations, whatever you can give, will go a long way to helping Seda live her best life.
Please join Todd and Kelsey’s support team in any way that you can. Every positive thought and prayer is incredibly valuable to them and our family.
Co-organizers (3)
Jennifer Anne
Organizer
Framingham, MA
Todd Johnson
Beneficiary
Kelsey Johnson
Co-organizer