Help Maranda fight against Chiari 1 malformation

About a month and a half ago, my beautiful daughter Maranda was diagnosed with congenital Chiari type 1 malformation. She has a large syrinx (cyst) occupying the majority of her spinal cord, caused by this skull deformity present since birth that has slowly caused brain herniation, impacting cerebrospinal fluid flow from the spinal cord to the brain, causing a large cyst covering over a third of her spine, putting pressure on her spinal cord and in her brain.

She has consulted with many neurosurgeons because her case is so severe , many were surprised upon seeing her MRI results that she was able to walk and not paralyzed . This made her seek out a neurosurgeon at John Hopkins who specializes with Chiari 1 malformation and decompression surgeries .

On June 4th, she will be having brain decompression surgery at John Hopkins in Baltimore, Maryland. She will have a rather long and painful surgery with an extensive recovery period and half a month stay in Baltimore. With the surgery, medical leave, and cost of hotels, not to mention everyday life such as care for her three children, etc. She will have an insurmountable amount of expense. I am hoping to help her take away some stressors .

I am asking that you help support her on this incredible scary medical journey. If you are not able to help monetarily, prayers, words of comfort, and encouragement are greatly needed also. Maranda has a Venmo account if you don’t want to give on this platform, it is @Maranda-Langston-1. Thank you all for your support! ❤️