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Steven's ALS Journey

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After almost a year of dealing with symptoms, my brother, Steven, was diagnosed with ALS on April 30th, 2018. 

There is no cure for ALS and the average life expectancy after diagnosis is 3-5 years.  In a nutshell, ALS affects the muscle and nerve cells. He will lose the function in his arms and legs, the ability to eat or speak and eventually not be able to breathe on his own. He will go to the ALS clinic at University Health Science Center, Colorado in mid-June. Until then, he is not sleeping due to the painful muscle spasms at night 

Those of you that know Steven, have witnessed his selfless and generous spirit. He honestly has never done a bad thing in his life. Those of you that don't know Steven, have enjoyed the pictures of family and nature that he shares.  He gives 100% of himself to his family, his job, his friends and his church. No ever feels they are not first in his life.

And now it's time to give back to him.

He is a teacher for Douglas County Schools in Colorado and has worked hard to provide a life so Chisa could be at home with the kids while they are growing up. He won't be always able to work, and Chisa's next job will be helping to care for him.

We don't know have quickly his ALS will progress but do know that there are items he will definitely need to be safe at home for the short and long-term: ramps built to go into the house, safety bars in the bathroom, a wheelchair and most likely a handicap accessible vehicle. 

We will also eventually have a collection of his photographs put together to help raise money.

I set the money total kinda high...he might need more someday. Anything left after medical and safety expenses would go to Chisa, Liana, and Daniel.
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Donations 

  • Anonymous
    • $200
    • 3 yrs
  • Kathy Voight
    • $100
    • 3 yrs
  • Anonymous
    • $50
    • 3 yrs
  • Alex Porter
    • $1,000
    • 3 yrs
  • PEI Y PAN
    • $100
    • 3 yrs
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Organizer and beneficiary

Christy Martin
Organizer
Indian Hills, CO
Steve Martin
Beneficiary

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