Strength For "Mad Max"
Max is 7 years old. He has a genetic disorder called Neurofibromatosis. He also has a Chiari Malformation that he had an unsuccessful brain surgery for in August 2016, and tethered cord syndrome that he had spinal cord surgery for in May 2017. He has a feeding tube placed. He has three brain lesions at the moment. He suffers from neuropathy, seizures, learning disabilities, Failure to Thrive, muscle weakness and atrophy, Gastrointestinal Issues, motor tics, compromised immune system.. etc..
He currently has three therapists and 16 doctors. His condition is progressive and is not expected to make an improvement. We only hope that we can continue to give him the best life possible for as long as we can. Any funds raised help with our daily life since I no longer work to stay home with Max, and also to help with doctor's bills, medical equipment and special outings that we can give Max to make a few more memories.
For drawing by Haden please send an email to. [email redacted]. Thank you ask and God bless!