Suffering from Prurigo Nodularis and need help!

Hey there, my name is Paul P, 45 years old, and I suffer from a horrible skin condition called Prurigo nodularis. Prurigo nodularis (PN) is a chronic inflammatory skin disease where an extremely itchy, symmetrically distributed rash appears most commonly on the arms, legs, the upper back and/or the abdomen. The itch associated with PN is so severe that it often interferes with sleep and psychological wellbeing. "The exact cause of PN is unknown, but altered function of the immune system and nerves in the skin is believed to be associated with heightened sensations of itchiness (pruritus) that leads to frequent scratching. Frequent scratching and picking of the skin is also thought to contribute to further lesion thickening and formation seen in the disease. PN can occur at any age but is more common in the elderly. When PN occurs in younger patients, it is more likely to be associated with inflammatory skin diseases, usually eczema (also called atopic dermatitis). Diagnosis is usually made by a dermatologist based on clinical symptoms and response to medications, but microscopic examination of a skin biopsy can aid in confirming the diagnosis. Although no FDA-approved treatments for PN currently exist, treatments used for other skin disorders ranging from topical creams to medications that alter the immune response are sometimes prescribed for patients with PN."

I have been living with this for over 30 years. 2 years ago, I have been properly diagnosed with PN, since all other doctors my whole life has misdiagnosed me with eczema. Imagine hearing that news. The itching, you wouldn't wish on your worst enemy! Its intense and lasts a long time. So, when I get an itch, as soon as I got to scratch it, my skin goes numb, so you don't get that satisfaction of scratching the itch. Then, the itch jumps to another spot on your body and now you're itching there. it's an endless cycle of torture. I'm constantly in pain and the burning is just dandy. I have tried every single topical on the market with very little results. I am a very slow healer and any products I try take so long to work or don't at all. So, I am currently on Dupixent, which is an injection I take in my stomach ever two weeks. Yes, it hurts, every time :) Dupixent is NOT cheap, and you have to jump through hoops with your doctor to get approved for it. Its costs about $40,000-$50,000 a year and about $15,000 in copays. I have been on it for over a year now and have seen a 15% healing rate, not good :( The only fast success I have had is with Phototherapy (narrowband UV-B phototherapy). Unfortunately, Insurance doesn't believe this is a real product and a way to heal my condition. I have a tiny handheld Phototherapy wand that has seemed to work pretty well. I have PN all over my body, arms, legs, back, neck, head, thighs. I call it the Single Mans Disease lol. So, the wand won't work for me :( The unit I need is about $8,000 since insurance won't help me heal! So here is my story and I'm sticking to it! lol I've dealt with this too long and just want to feel normal in my skin again. Thanks so much for hearing me out.