SuperJaxtheBrave — SJIA fighter
Donation protected
Hi , I’m Jax Taylor’s mom, Tiffany. Jax is my super brave little man.
Imagine waking up every night watching your 2 year old scream in pain, run 105 degree temperatures, aches and pains all over his body, and no amount of fever reducers will help his pain or control his fevers. And then you are stuck going to Dr to Dr, drawing the same labs, ER visits ruling out meningitis and other ailments, just to be told "they don't know" why your child has these symptoms. After years of pain, fevers, loss of weight due to inability to hold down foods, stiff neck for weeks at times, misdiagnosed over & over, Jax was finally referred to a specialist and diagnosed with Systemic Juvenile Idiopathic Arthritis. SJIA is a rare form of arthritis found in children. This disease affects areas of the body and internal organs. Systemic means that SJIA disease affects the whole body. SJIA causes fever, rashes, swelling, and pain in the joints. Only 1 in 8 doctors will see this in their lifetime. SJIA is a disease that needs to be controlled over time. The treatment involves numerous expensive medicines in hopes to kick Jax's body into remission. He takes an injection in his tummy every 2 weeks. He requires medicines daily for aches, pains, and fevers. This adds up. But he is worth every penny.
Jax has been a superstar. He is so brave. While most kids cry being stuck with a needle at the ER, Jax thanked the nurses. (Not a dry eye in the room after that). He has never stopped. He tries to keep up with his cousins, but pays dearly for it afterwards. He wants to be a normal boy. Jax hasn't had the "normal" childhood of climbing, running, and jumping. Every movement he does, he suffers later. I ask you to pray for my 8 year old to go into remission and let him have the joy of being a kid.
Jax is bright smart child. He has such a golden heart. His love for others is remarkable. Jax thinks of others before himself. Battling his disease, Jax has shown much bravery. This brave eight year old has a lot of fight left in him.
Jax’s meds are expensive and my insurance doesn’t cover all the cost. As his mom, I’m asking for many prayers and many kind thoughts for my little man. I’m asking if you are led to donate to help my SuperJaxtheBrave; I would greatly appreciate all the support. I’m very thankful for my little man. We are here together to fight his disease. Much love , Jax and Tiffany
Imagine waking up every night watching your 2 year old scream in pain, run 105 degree temperatures, aches and pains all over his body, and no amount of fever reducers will help his pain or control his fevers. And then you are stuck going to Dr to Dr, drawing the same labs, ER visits ruling out meningitis and other ailments, just to be told "they don't know" why your child has these symptoms. After years of pain, fevers, loss of weight due to inability to hold down foods, stiff neck for weeks at times, misdiagnosed over & over, Jax was finally referred to a specialist and diagnosed with Systemic Juvenile Idiopathic Arthritis. SJIA is a rare form of arthritis found in children. This disease affects areas of the body and internal organs. Systemic means that SJIA disease affects the whole body. SJIA causes fever, rashes, swelling, and pain in the joints. Only 1 in 8 doctors will see this in their lifetime. SJIA is a disease that needs to be controlled over time. The treatment involves numerous expensive medicines in hopes to kick Jax's body into remission. He takes an injection in his tummy every 2 weeks. He requires medicines daily for aches, pains, and fevers. This adds up. But he is worth every penny.
Jax has been a superstar. He is so brave. While most kids cry being stuck with a needle at the ER, Jax thanked the nurses. (Not a dry eye in the room after that). He has never stopped. He tries to keep up with his cousins, but pays dearly for it afterwards. He wants to be a normal boy. Jax hasn't had the "normal" childhood of climbing, running, and jumping. Every movement he does, he suffers later. I ask you to pray for my 8 year old to go into remission and let him have the joy of being a kid.
Jax is bright smart child. He has such a golden heart. His love for others is remarkable. Jax thinks of others before himself. Battling his disease, Jax has shown much bravery. This brave eight year old has a lot of fight left in him.
Jax’s meds are expensive and my insurance doesn’t cover all the cost. As his mom, I’m asking for many prayers and many kind thoughts for my little man. I’m asking if you are led to donate to help my SuperJaxtheBrave; I would greatly appreciate all the support. I’m very thankful for my little man. We are here together to fight his disease. Much love , Jax and Tiffany
Organizer
Tiffany Taylor Pickering
Organizer
Laurel, MS