Support Aaron and family - Motor Neurone Disease

Time. There’s never enough of it - and Aaron is hoping for a miracle.

On behalf of Aaron's family and friends, together with the wider local community we are raising funds for our colleague and friend, Aaron Williams.

Aaron was diagnosed with Motor Neuron Disease (MND) in October or November 2023 and requires our help to battle this diagnosis.

Aaron is a 42 year old man from Peak Hill has lived on the south coast for over 16 year’s with his wife Beryl and his six children, Oshay (20), Amos (18), Taja (16), Shia (13), Khadeesja (10) and Odin (6).

Aaron is a much loved husband, father, son, brother, uncle and friend to many.

He was a fit an healthy young man, before being knocked down with this cruel disease. His initial diagnose came with 12 month life expectancy. However, this has increased to approximately 2 years.

Aaron no longer has use of his hands and arms. He cannot drive, feed himself, and relies on his supportive family to do this for him. Obviously he also needs support with his every day needs of using the bathroom, showering and other things we can easily take for granted.

Aaron and his family of 10 are now currently staying with his parents in Queanbeyan NSW, in a 3 bedroom home for the treatment he requires to help Aaron prolong life - a fight he is willing to take on for his family.

Aaron can no longer work due to his condition & upon news of his illness his wife immediately quit her job to take care of him full time. Therefore, their ability to earn an income has been lost, he still has bills to pay, including medical and and a household to maintain. Additionally, his health insurance has also refused his claim because his life expectancy is over 12 months and they require less than 12 months life expectancy to honor any pay out.

Motor Neurone Disease is a Neuro Degenerative Disease (NDD) which means the central nervous system is unable to send signals to his motor neurones which are critical to moving limbs and control movement.

For 50% of sufferers, life expectancy from diagnosis is less than 2 year’s , and the disease will gradually impact his ability to use his limbs, to be able to speak and in time, potentially affect Aarons ability to breathe unaided.

Aaron knows, the coming weeks and months - the actual reality of the disease and the challenges that he and his family will face.

Aaron truly hopes one day in the not too distant future that a cure is found for MND, but for now, Aaron will try to slow its progression via medical treatments and hoping to get into clinical trials and keep his mental health in a good position.