Support Aaron's Legacy for Potters Syndrome
Donation protected
Aaron was one out of 5,000 children that are diagnosed with Potters Syndrome (Bilateral Renal Agenesis) each year. This diagnosis is caused from no kidneys and no bladder detected at the anatomy scan.
This diagnosis did not give us many options. Our options were very slim; move to Texas to go to a treatment facility (experimental) at no later than 26weeks pregnant and begin Amnio Infusions. We would have lived in Texas for years till he would make it successfully with a kidney transplant which Aaron would hope to make it to around 3 years old. Our other option was to terminate the pregnancy. Our third option was to carry Aaron as long as he wanted and spend as much time as possible with him after birth.
We ended up giving this to the Good Lord and carried him, spent almost 3 beautiful hours with Aaron. With your help, we would love for Aaron’s name to help these babies and families for years to come.
Aaron will be donating 100% of the funds raised to a BRA survivor~ Hannah Redman.
Our hope is that one day, these babies get the chance to have a beautiful quality of life, and Aaron’s name lives on with the purpose to help these babies see a long, beautiful life!
Of course, this all depends on you! Any help we can get; Sponsorship or donations, or to just come out and support Aaron’s cause, we would be forever grateful.
God gave this journey to us, for a reason, and we are listening!
Let's make a change!
Organizer
Morgan Henricks
Organizer
De Soto, MO