Support Caliyah's Fight Against NF1
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Help Caliyah and Her Family Fight NF1
Dear friends and kind-hearted supporters,
We are reaching out to share the story of a truly remarkable family facing an incredibly challenging journey. Caliyah, the beautiful daughter, was born on January 16, 2023. Alongside her loving older siblings, Ella and Adam, Caliyah has brought immense joy and light to her family.
However, at just six months old, Caliyah was diagnosed with Neurofibromatosis Type 1 (NF1)—a rare and incurable genetic condition that causes tumors to grow along the nerves.
What is NF1?
NF1 comes with a host of challenges, including:
• Painful tumors that can affect movement.
• Changes in physical appearance.
• Possible hearing, vision, breathing impairments, and death.
For Caliyah, this diagnosis has already brought significant struggles. She currently has tumors in her throat, making swallowing and even breathing incredibly difficult at times.
A Family’s Unwavering Strength
Despite the immense emotional and physical toll, my husband and I have faced this journey with courage and determination. We recently relocated to a new state, navigating career and insurance changes—all while adjusting to the financial demands of Caliyah’s ongoing care.
The cost of managing NF1 is overwhelming. Regular doctor visits, specialized treatments, and therapies to slow the progression of the disease all come with high expenses. Moreover, both parents frequently need to take time off work to care for Caliyah, adding to our financial strain.
How You Can Help
We are asking for your support to help ease this incredible burden. Your contributions will go directly toward:
• Caliyah’s medical care, including appointments, medications, and potential surgeries.
• Assisting the family with day-to-day expenses while my husband and I focus on caring for our daughter.
• Supporting the family’s ability to provide the best possible quality of life for Caliyah.
Join Us in Making a Difference
Caliyah’s journey is a long and challenging one, but with the love and generosity of our community, you can help this beautiful little girl focus on what matters most: being together and giving Caliyah the care and comfort she needs.
Please consider donating and sharing this campaign to spread the word. Every contribution, no matter the size, will make a meaningful difference in our lives.
Thank you for your kindness and support.
Organizer
Mersiha Kuennen
Organizer
Sparks, NV