Support Corbyn's Journey to Health and Healing

Hey everyone,

My name is Stacie. I am a mother to 4 wonderful kids and grammy to 4 grand babies that are my pride and joy. I am wanting to raise money for my oldest daughter and son in law. They are really going through it right now, and I'm about to tell you the story.

When Corbyn turned 6 months old, he had his first pass out spell. Courtney and Tyler were worried about it not being a normal breath holding spell so she called the pediatrician and ask what she thought about it. The doctor wanted the video they took so she could watch it and confirmed that they needed to go to the ED to get him evaluated. This went on for months. There was another time last year before his 1st birthday that he passed out and didn't regain consciousness and had to call the EMS to come check him out. They were told that his stats were good and they could take him down to the ED again. At Children's, they performed a EKG on Corbyn to make sure his heart was beating correctly and checked his oxygen and blood pressure. Everything came back good.

Fast forward a couple weeks, after taking with the pediatrician, she referred Corbyn to see a Cardiologist just to get a better reading on his heart. Corbyn had to wear a heart monitor for a week and the results came back normal.

After that they were referred to ENT doctor who then performed a scope checking his throat and voice box.They saw some irritation and thought that maybe reflux was causing his throat to spaz shut when crying. He was put on an anti acid and it didn't make any difference. He had an allergic reaction to the medication.

After that, they were referred to the GI doctor who then referred him to neurology who then ordered an EEG and a MRI of his brain to rule out a mass or epileptic activity.

EEG was normal, MRI results came back that Corbyn has Chiari Malformation type 1. After this, the Neurologist referred him to a neurosurgeon.

Neurosurgeon went over the MRI results in more detail. Not only does corbyn have Chiari Malformation, he also has a large Posterior Archanoid Cyst that is compressing his cerebellum(brain)When he cries, the brain swells compressing the nerves that control swallowing and breathing. This is why he has been passing out.

Neurosurgeon referred them to the speech therapy for a swallow study which showed him that he is aspirating thin liquids. Aspiration is when liquid is going into the airway instead of the stomach which can lead to infection. With this, they had to see the speech therapist who then recommended that he should thicken his liquids.

At corbyns 1 year well check, his pediatrician noticed that he fell off the growth curve a lot and that it started to worry her. She then sent him down to Children's to get some lab work done. It came back that he was low on both growth hormones. She referred him to Endocrinology.

Endocrine ordered more labs. All his labs except for the growth hormones came back good. Courtney and Tyler decided that they wanted to wait on hormone replacement.

At his time Corbyn has been getting a lot worse. He has been passing out 1-3 times a day, not sleeping through the night, going through bottles of pain medicine, ect.

Corbyn ended up sick with covid as did courtney, Tyler and Evelyn. Corbyn had fevers as high as 102 degrees and had a cough. When courtney was laying with him for bed he got a pain and ended up doing his breath holding and passing out. Right after he passed out courtney noticed that he was not coming back to and instead, he went into a Clonic-Tonic Seziure. They called the EMT who then agreed he needed to be rushed down to Children's for further examination. they were released that night and told to follow up with pediatrician and his neurologist. They are thinking it was a febrile seizure.

After this, he had his follow up appointment with the ENT doctor who decided she didn't like that he was getting ear infections back to back and said it looked as if he still had fluid behind his ears and believes that he would need tubes. She also told them that GI and herself would like to perform another type of scope while he's asleep that looks at his voice box to see if there is an indentation that could be causing his aspiration. If there is a indentation, then he will need to have reconstructive surgery to make the voice box flat like normal.

Finally his neurosurgeon agreed to perform the decompression surgery and we have it scheduled this month. He will be getting a Chiari 1 Decompression, Bilateral C1 Laminectomy, Tonsillar Shrinkage , and a Resection of the Retrocerebellar Archnoid Cyst.

basically what this means is they are going to make a incision from his first vertebrae up the back of his head, cut out a portion of the base of his skull, cut out a small portion of his low hanging brain matter , drain the cyst and trim down the bone on the vertebrae to allow his brain to expand.

With all of this, Tyler will have to take some time off of work and we are not sure how long that will have to be with the 5 day hospital stay, physical therapy, occupational therapy, and 2 week recovery time. This is why I am creating this to provide them with some financial relief in case Tyler needs to take off of work for longer than expected. Thank you all so much for reading Corbyns story.

go fund me takes a portion of every donation so if you want to pay elsewhere, they are listed below .

you can also send donations to courtney:

Cashapp- $CourtneyMahan

Venmo-@Courtney-mahan-21

apply pay- 5134854712

zelle- 5134854712