Support Diandra's Fight Against ME CFS
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I just wanted to give a quick update because many people have asked me what happened or how she got this illness. We
believe, along with some medical professionals, that this happened from a series of events. Starting with her having a traumatic labor and delivery with her son, (she hemorrhaged and almost died. She truly needed a blood transfusion (but A decision was made by the doctors to not give her one because she was considered very healthy and young). Within only a few hours after her c-section she was given the Covid vaccine..(keep in mind this was the height of the pandemic in 2021). In the months following the birth of her son, she never seemed to bounce back to her healthy self, and then about six months later she got Covid. The theory is that the combination of these 3 major events altered her body to the state that it is in now.
•please read for original post•
My name is Kerry and I have a 32-year-old daughter named Diandra. She got married in 2020 to her prince! Then in August of 2021, she gave birth to their beautiful son. Her dreams of being a wife and mother had finally come true!
That is why it breaks my heart to say that Diandra has been suffering from an illness for about a year now. She has been diagnosed with ME/CFS. She is considered “on the severe end” and she has been housebound for about 9 months now, and lots of time bedbound.
For those that don’t know about this disease/illness, there is no cure at this time and no specific medicine for it. If you are one of the lucky ones then you might be able to manage a couple of your symptoms.
So basically every system in her body is misfiring and not working as a healthy body should. This starts at a cellular level and literally affects her entire body!
Doing something as simple as brushing her teeth or standing up to hold her son, causes her body to shut down and fight itself.
This illness doesn’t care that she is a mom of a toddler. It doesn’t care that all she wants to do is be able to take care of her son and play with him and do all the normal activities that parents get to do with their kids. This illness is robbing her of those everyday moments that most of us get to enjoy. Here are just some of the symptoms she deals with every single day:
Brain fog and brain tingling
Head pressure
Muscle pain
Muscle weakness
Severe fatigue
POTS
Digestive issues
Racing heart
Orthostatic intolerance
She uses a wheelchair to go to doctor's appointments and her husband has to carry her down 2 flights of stairs to the car.
The GoFundMe is needed so we can try to get her the medical help she needs. There are not a lot of doctors that treat ME/CFS. The one doctor in Boston that has extensive knowledge on this illness, is no longer accepting any new patients. Almost everything we have done since her diagnosis has been out of pocket. There is so much more testing and trial treatments to be done but they are all so costly.
Some other countries have made some advances in the quest for medical management. We would love to be able to get her any/all the help she needs in order to overcome this illness.
My daughter deserves to get the help she needs by medical professionals and shouldn’t have to worry about how she will pay for the next medicine, or the next test etc… No human being should have to decide between paying their rent or getting medical care.
SO PLEASE DONATE AND HELP MY DAUGHTER! SHE JUST WANTS TO BE A NORMAL MOM AGAIN TO HER SON!!!
Organizer and beneficiary
Kerry Jewell
Organizer
Malden, MA
Justin DeFreitas
Beneficiary