Aiden & Lucas

Edit******

No parent can ever plan for the loss of a child and I can't even begin to imagine the pain of losing two

It is with a very heavy heart I share the devastating news that Aiden has also lost his battle to NRROS only a short time after his twin brother Lucas lost his battle.

Please donate to help this lovely, amazing family have the time they need to process this devastating news and grieve their twin boys without having to worry.

If you're unable to donate please help by sharing this post.

Funds raised will help give Aiden the Send off he deserves and funds left with help the family raise awareness and get answers they deserve.

I am writing this very saddened update with a very heavy heart.

Sadly Lucas lost his fight to NRROS last night, I have altered the target and hope we can raise some extra funds for this amazing family to help give Lucas the send off he deserves.

Hi everyone,

I'm sure most of you will have read Aiden & Lucas's story, but for those of you who haven't.

Aiden and Lucas's parents have received the devastating news that their beautiful twin boys (age 2.5years old) have an extremely rare gene mutation (NRROS Gene mutation).

There isnt alot of research at all as it's extremely rare and there isn't alot of treatment available at present.

I have set this fundraiser up in the hope it will relieve some financial stress off the family for any treatment they may have to pay for or even research.

Also to give them something extra to make memories with all 3 children without the financial stress they may feel.

These boys and this family deserve to have happiness and hopefully by giving a small donation you'll help this happen.

#NRROS #GENEMUTATION #UK #International #Child #Children #Medicine #Medical #Clinical #Gene #HumanGenetics #Epilepsy #Seizures