Support for amazing Noah (Carlton Primary School)
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Fundraising Appeal for Noah – a robot for a superhero!
Noah is in in Year 2 pupil at our school, and we love him to pieces. It was Noah’s 7th birthday this week and he had undergone another major (and successful) operation this week. Many of you know Noah, but I don’t imagine all of you know just what this fine young person has faced in his first 7 years of life.
I have to say that I am an in awe of how amazing Noah and his family keep being so positive and upbeat. Noah quite simply is a remarkable young person – full of fun, love, humour and character. He has the resilience and determination of a superhero.
To support, we want to purchase a ‘telepresence robot’ called AV1. Having an AV1 will enable Noah to participate in lessons and access his vital education as well have social contact with his peers when he is at home or in a hospital bed, when is not able to be in school. Mrs Smith and Mrs Burton, alongside Noah’s family have been working together and we have an AV1 on loan for the rest of this term. We want to purchase one so Noah can use it as and when required over the next 4 years at Carlton Primary School.
An AV1 robot costs around £4000 to purchase (including a year support package) and then will have an annual cost in the region of up to £1000. We would love your support in helping us fund this amazing piece of technological kit for Noah. We would love to raise a total of £6500 that would fund use of V1 for Noah for the rest of his primary school career.
Noah’s Mums, Diane, has kindly written a powerful and informative piece of Information about Noah, his medical condition and some of what he has had to face. Please take moment to read all about the challenges he has faces and the remarkable attitude he manages to demonstrate
All about Noah F
Noah was born after a normal pregnancy but as soon as he arrived it was very clear to the doctors that something was not quite right.
Noah was born at York Hospital and within a few minutes he had stopped breathing and needed to be resuscitated a few times, when the doctors failed to keep him breathing, they knew something was seriously wrong so placed him on a breathing tube and ventilator to keep him alive while they figured things out. Things became apparent when a feeding tube tried to be placed, several attempts were unsuccessful, so an x-ray was done which showed Noah’s Oesophagus was not attached to his stomach and his stomach was attached to his lungs, this was the start of a very long list of diagnosis, but this was the first one been Trachea Oesophageal Fistula - Oesophageal Atresia (TOF/OA). York was unable to handle the complexity of the discovery, so a specialist ambulance was arranged for Noah to be transported out, the options were Leeds or Newcastle and thankfully Leeds had a bed and were able to take him.
I was unable to travel to Leeds with him as needed to recover from surgery and his dad was not allowed in the ambulance as there was lots of equipment that needed to travel with him. Noah was quickly transferred then we had to give consent over the phone for him to undertake his first of many operations, this one lasted 12 hours. After the surgery, a doctor rang us to say it was over, but the diagnosis was a lot worse than first thought and that Noah had a lot of complications so a diagnosis of VACTERL Association was given to us. This means that Noah had a lot of problems on the inside of his body, ones that would require a lot of operations and hospital stays. On day of life Noah’s Oesophagus was reconnected and a stoma was placed for waste collection from his bowel. As a family we did not get to see him until he was around 40 hours old.
Since this early diagnosis Noah has undergone around 50 operations, an uncountable hospital admissions and appointments on an almost weekly basis. He has had a kidney removed, a stoma bag placed a gastrostomy button placed, his remaining kidney operated on, his chest opened, and throat operated on, hernias, repositioning of his pipework from his bladder, regular oesophagus stretches to name but a few. On diagnosis it was also discovered there was a heart defect and that Noah also had left sided deafness. He has also recently recovered from a stay in the intensive care unit in Leeds where were told as a family to prepare for the worst as Noah was on life support for an extended amount of time. He fought back and amazed everyone including the doctors. We have required medical assistance while been on family holidays, he even ended a holiday in Scotland last year with a stay in the local HDU unit. After every hospital admission Noah bounces back to his happy little self, he honestly has more strength than I have ever seen on anyone, especially for all he goes through.
When Noah was born, we were told not to expect too much as he probably would not survive and not to plan too far ahead and probably would not make it to eve attend school, so you can probably imagine that him attending the school that his brothers and sister attended is an amazing achievement to us all! He really is the happiest little boy who amazes us all daily with everything he goes through and will always have to go through.
Because Noah has so many hospital admissions and his vulnerabilities means even a common cold can end up with a hospital stay he is missing large chunks of his education, that’s where we need help.
We would love you to donate to this appeal. We suggested a donation of £1 for our first fundraiser (a non-uniform day). Some families gave so much - we managed to raise £570 on day one.
I already know the incredibly generous Keely from Frying Nemo’s has made a huge donation of £500 to help kick start this appeal, and many other local businesses, friends etc will get involved too. Our non-uniform day is just the first part of our fundraising, with a staff raffle, school raffle and other things to follow. The Amazing Oddsfellows and Foresters Pubs in Carlton Village are both being so supportive too.
Please give generously - every pound helps.
Another way of supporting this appeal it to share it with other people who you think might be willing to help – whether local businesses, friends and family members too.
In these last few months of challenge, the kindness and community spirit often demonstrated is the most positive thing to emerge. Let’s all do our part to support one of Carlton’s own, and support getting the technology in place that would really enrich Noah’s social and academic life. Please support us in raising money to support this brave, funny and wonderful pupil.
Thanks for taking the time to read this and thank you in advance for your generous support.
Kind regards
Jon Watson
Headteacher
Carlton Primary School
#robotforasuperhero
#gamechangerfornoah
Noah is in in Year 2 pupil at our school, and we love him to pieces. It was Noah’s 7th birthday this week and he had undergone another major (and successful) operation this week. Many of you know Noah, but I don’t imagine all of you know just what this fine young person has faced in his first 7 years of life.
I have to say that I am an in awe of how amazing Noah and his family keep being so positive and upbeat. Noah quite simply is a remarkable young person – full of fun, love, humour and character. He has the resilience and determination of a superhero.
To support, we want to purchase a ‘telepresence robot’ called AV1. Having an AV1 will enable Noah to participate in lessons and access his vital education as well have social contact with his peers when he is at home or in a hospital bed, when is not able to be in school. Mrs Smith and Mrs Burton, alongside Noah’s family have been working together and we have an AV1 on loan for the rest of this term. We want to purchase one so Noah can use it as and when required over the next 4 years at Carlton Primary School.
An AV1 robot costs around £4000 to purchase (including a year support package) and then will have an annual cost in the region of up to £1000. We would love your support in helping us fund this amazing piece of technological kit for Noah. We would love to raise a total of £6500 that would fund use of V1 for Noah for the rest of his primary school career.
Noah’s Mums, Diane, has kindly written a powerful and informative piece of Information about Noah, his medical condition and some of what he has had to face. Please take moment to read all about the challenges he has faces and the remarkable attitude he manages to demonstrate
All about Noah F
Noah was born after a normal pregnancy but as soon as he arrived it was very clear to the doctors that something was not quite right.
Noah was born at York Hospital and within a few minutes he had stopped breathing and needed to be resuscitated a few times, when the doctors failed to keep him breathing, they knew something was seriously wrong so placed him on a breathing tube and ventilator to keep him alive while they figured things out. Things became apparent when a feeding tube tried to be placed, several attempts were unsuccessful, so an x-ray was done which showed Noah’s Oesophagus was not attached to his stomach and his stomach was attached to his lungs, this was the start of a very long list of diagnosis, but this was the first one been Trachea Oesophageal Fistula - Oesophageal Atresia (TOF/OA). York was unable to handle the complexity of the discovery, so a specialist ambulance was arranged for Noah to be transported out, the options were Leeds or Newcastle and thankfully Leeds had a bed and were able to take him.
I was unable to travel to Leeds with him as needed to recover from surgery and his dad was not allowed in the ambulance as there was lots of equipment that needed to travel with him. Noah was quickly transferred then we had to give consent over the phone for him to undertake his first of many operations, this one lasted 12 hours. After the surgery, a doctor rang us to say it was over, but the diagnosis was a lot worse than first thought and that Noah had a lot of complications so a diagnosis of VACTERL Association was given to us. This means that Noah had a lot of problems on the inside of his body, ones that would require a lot of operations and hospital stays. On day of life Noah’s Oesophagus was reconnected and a stoma was placed for waste collection from his bowel. As a family we did not get to see him until he was around 40 hours old.
Since this early diagnosis Noah has undergone around 50 operations, an uncountable hospital admissions and appointments on an almost weekly basis. He has had a kidney removed, a stoma bag placed a gastrostomy button placed, his remaining kidney operated on, his chest opened, and throat operated on, hernias, repositioning of his pipework from his bladder, regular oesophagus stretches to name but a few. On diagnosis it was also discovered there was a heart defect and that Noah also had left sided deafness. He has also recently recovered from a stay in the intensive care unit in Leeds where were told as a family to prepare for the worst as Noah was on life support for an extended amount of time. He fought back and amazed everyone including the doctors. We have required medical assistance while been on family holidays, he even ended a holiday in Scotland last year with a stay in the local HDU unit. After every hospital admission Noah bounces back to his happy little self, he honestly has more strength than I have ever seen on anyone, especially for all he goes through.
When Noah was born, we were told not to expect too much as he probably would not survive and not to plan too far ahead and probably would not make it to eve attend school, so you can probably imagine that him attending the school that his brothers and sister attended is an amazing achievement to us all! He really is the happiest little boy who amazes us all daily with everything he goes through and will always have to go through.
Because Noah has so many hospital admissions and his vulnerabilities means even a common cold can end up with a hospital stay he is missing large chunks of his education, that’s where we need help.
We would love you to donate to this appeal. We suggested a donation of £1 for our first fundraiser (a non-uniform day). Some families gave so much - we managed to raise £570 on day one.
I already know the incredibly generous Keely from Frying Nemo’s has made a huge donation of £500 to help kick start this appeal, and many other local businesses, friends etc will get involved too. Our non-uniform day is just the first part of our fundraising, with a staff raffle, school raffle and other things to follow. The Amazing Oddsfellows and Foresters Pubs in Carlton Village are both being so supportive too.
Please give generously - every pound helps.
Another way of supporting this appeal it to share it with other people who you think might be willing to help – whether local businesses, friends and family members too.
In these last few months of challenge, the kindness and community spirit often demonstrated is the most positive thing to emerge. Let’s all do our part to support one of Carlton’s own, and support getting the technology in place that would really enrich Noah’s social and academic life. Please support us in raising money to support this brave, funny and wonderful pupil.
Thanks for taking the time to read this and thank you in advance for your generous support.
Kind regards
Jon Watson
Headteacher
Carlton Primary School
#robotforasuperhero
#gamechangerfornoah
Organizer
Carlton PrimarySchool
Organizer
England