Support for Baby Rowan's Journey

We’re reaching out to share the story of our beloved nephew Brandyn, his wife Lyn, and their baby boy, Rowan, who was born on October 23rd, weighing a healthy 7 pounds and brimming with potential.

Early in Lyn’s pregnancy, however, Brandyn and Lyn received heartbreaking news: Rowan had been diagnosed with hypoplastic left heart syndrome (HLHS), a rare and serious congenital heart condition that prevents the left side of the heart from developing properly. Hearing this was devastating, filling their hearts with both hope and fear as they prepared for the medical journey ahead.

Since his birth, Rowan has already shown tremendous courage, enduring his first heart surgery shortly after arrival. He faced a critical moment when his heart briefly stopped, requiring immediate CPR, but he pulled through. Unfortunately, it was also revealed that his tricuspid valve was leaking severely and presented the reality that Rowan will likely have to have a heart transplant, which means a lengthy hospital stay for the family while they await a donor for Rowan, all while juggling duties at home and with their five-year-old daughter, Sophia.

As of November 3, 2024, we are grateful to report that Rowan is making some encouraging progress. He hasn’t experienced any seizures or strokes and is responding as his sedation is gradually reduced. Although we are awaiting an MRI to assess any potential brain impact, his organs are showing signs of recovery, and his medical team is evaluating when he can be taken off the ECMO machine.

Brandyn, Lyn, and Rowan have been through so much, and they need our support to navigate the immense medical costs and challenges of the coming months. Any contribution will help ease the financial burden and provide stability for this young family during this challenging time. Your generosity and kindness are deeply appreciated as we rally around Brandyn, Lyn, and baby Rowan.

About Hypoplastic Left Heart Syndrome:

HLHS is a congenital condition in which the left side of the heart is underdeveloped, impacting its ability to pump blood effectively. The right side of the heart must work harder, taking on the role of pumping blood both to the lungs and to the body. Treatment for HLHS can include medications, surgeries, and even heart transplants. Advances in medical care have greatly improved the outlook for babies born with HLHS.

Thank you for being part of Rowan’s journey.