Support Jades Journey to live Chronic Lyme and P.A.N.S. free
Donation protected
Over 2 years ago, after 8 years of misdiagnosis and improper treatment, Jade was diagnosed with P.A.N.S. and Chronic Lyme Disease with a host of other co-infections including Babesia. Jade, who is now 12, started to experience joint pain, gastrointestinal issues, fatigue, psychosis, debilitating OCD, motor tics, and vocal tics, but had no idea why. It took over 8 years of misdiagnosis and countless doctors to finally get a diagnosis for Chronic Lyme and P.A.N.S. While there is no way to know exactly when she contracted these diseases, it was likely as a toddler. Her entire life has been filled with unexplainable symptoms, illnesses, and struggles that no child should have to endure. Jade has suffered through many doctors visits and been dismissed by local doctors time and time again. It wasn't until her AMAZING mom, Leah, spent all her time researching her symptoms and found a Lyme literate doctor in Columbus, OH who gave them hope and their official diagnosis. All visits are 100% out of pocket expenses, not covered by insurance. This is a life-altering battle that no person should have to go through, let alone a child.
Until one understands how incredibly complex Chronic Lyme is, they cannot imagine how it adversely affects every organ and system in the body, including the brain.
If you know the Wallace Family, you know that they are a hardworking family who are raising 3 kids in the town of Milton, WV. If you don’t know them, Brian and Leah have dedicated their lives to making sure their children are able to grow up happy and healthy. Unfortunately, as hard as they've tried, Jade has not had the opportunity to do so. But there is hope. With the proper inpatient treatment, there are options to help Jade finally know what it feels like to be a normal child. One of these treatments is a very expensive 2 week long procedure that Brian and Leah believe will save Jade's life.
Chronic Lyme Disease is not entirely recognized by the CDC and the care that Jade needs and undergoes is not covered by insurance. Jade has not been able to collect any type of medical assistance, so despite both of her parents working tirelessly and making a respectable salary, they have incurred very significant expenses. Brian and Leah have paid thousands upon thousands out of pocket and have incurred significant medical bills. Not many families can sustain this level of care. Jade needs your support to relieve the financial burden that her care has placed on her parents and to support her continued treatment which includes treating Lyme and other co-infections.
To help you understand why her care is not covered, I encourage you to watch The Quiet Epidemic. This documentary can be found on Apple TV or Amazon Prime Video and is eye-opening. In the meantime, I am asking you to support Jade in her Journey to continue treatment in hopes to help her gain remission from the symptoms she is experiencing. All funds will go towards her current care, as well as any future treatments recommended by her medical team. The length of the treatments to come is unknown.
This GoFundMe was not created at the request of the Wallace family, but out of love for the Wallace family, with their blessing. The Wallaces are private by nature and many do not know of their struggles. Thank you for taking the time to read this. I believe the power of community can make a profound difference in someone’s life. Please consider donating to help Jade regain her health and quality of life. No donation is too small. Your generosity will be felt beyond words. If you are unable to donate, please consider sharing her story so that more might be moved to help support Jade while she is in acute need.
Did you know Lyme Disease has been nicknamed “the great imitator” because its symptoms mimic those of so many other illnesses. Lyme disease treatment is not covered by insurance companies and is all out of pocket. This is why I am asking for your support. Every dollar donated will get Jade closer to the life-saving treatment she needs... and will hopefully lessen the stress her parents feel.
To put Jade's story in perspective, here is what any given day looks like for her...
• Alzheimers-like forgetfulness, and brain fog.
• Air Hunger.
(Babesia disrupts pathways between the brain and the respiratory system, so your brain tells you are suffocating. It also makes your blood thick, so it’s harder to pass through.) This is torturous.
• Intense fatigue, unable to move her body.
• Pain, the most unforgiving pain in her muscles and joints.
• Unable to feel her hands and feet.
• Suicidal thoughts.
• Severe depression.
•Anxiety and OCD.
(As a parent myself, I cannot imagine having to worry about your child harming themselves to the point of no return.)
• Chills and random fevers.
• Full body tremors.
• Migraines.
• Gastrointestinal issues.
• Seizures.
• Passing out and losing consciousness at any given time.
• Muscle aches.
• Appetite loss and food restrictions.
•Food and clothing sensitivities.
• Extreme thirst.
• Sensory processing disorders that affect her ability to take medications and her ability to get the right amount of nutrition.
• Broken bones due to nutrition deficiencies.
• Countless ER visits, ambulance rides, hospital stays, MRIs, CT scans, EEGs, x-rays, bloodwork, and too many others to list.
Organizer and beneficiary
Lisa Kirby
Organizer
Milton, WV
Leah Wallace
Beneficiary