Support John's ALS Medical and Caregiving Needs

As most of you know, John was diagnosed with ALS in 2018. As of today, John is no longer mobile; he has very little use of his right arm, and his breathing capacity is down to 79% and continuing to decline. His voice has started to be affected, although working with a breath specialist has tremendously improved his function.

Unless you have been directly affected by ALS, it is hard to comprehend the daily cost of living with ALS. Until now, we have been paying for his medical needs out of pocket; however, the costs and needs continue to grow.

I own my own business, and although things are going very well, the cost of John's needs continues to increase, and it will only continue to do so as he continues to decline and need more assistance.

The goal of this fundraiser is to raise money for in-home care so that I can continue to focus on work, his weekly out-of-pocket expenses such as physical therapy, breathing specialist, and renovating our master bath to allow him to be able to roll in with a wheelchair as he is no longer able to get in the shower without assistance.

The average cost of living with ALS is around $250K out of pocket for families, and for most of us, that is not sustainable, and we can't do it alone.

In-home care costs are expected to be approximately $37K

PT and Breathing specialists, we currently pay $1,500 per month

Medications are roughly $2,200 per month, and the quote for the ADA shower came in at $13K. These are just a few of his current needs.

We understand that everyone has things going on, and respect and appreciate that. Please know that any amount helps as it all adds up.

Thank you for your support and continued prayers.

The Egan's