Support Kevin's Heart Transplant Journey

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Hello everyone. My name is Kevin, I am 57 years old and I am in end-stage heart failure. I am in the process of getting tested and talking to a heart transplant team. I have insurance, but I will be missing a lot work due to this condition and I am having trouble keeping up with Copays and day-to-day expenses such as rent, electricity, food, toiletries, etc. Please share this with others.

Life expectancy for someone with end-stage heart failure

The life expectancy for a person with end-stage heart failure will depend on the severity of the condition and how they have responded to treatment.

Once heart failure progresses to stage D, people experience poor quality of life and high symptom burden and face a median life expectancy of only 6–12 months.

According to a 2019 review Trusted Source, the average survival rates of people with heart failure are as follows:

86.5% of people with heart failure survive for 1 year

72.6% of people with heart failure survive for 2 years

56.7% of people with heart failure survive for 5 years

34.9% of people with heart failure survive for 10 years.

The overall 5-year survival rate for people with heart failure is around 60%.

A 2019 analysis Trusted Source indicated that 91% of people who receive a heart transplant live for at least 1 year. However, the median survival rate post-transplant is 12–13 years.

According to a small single studyTrusted Source, the survival rates for people who receive a left ventricular assist device after 2, 3, and 4 years are approximately 71%, 62%, and 45%.

Summary

End-stage heart disease is the most severe form of heart disease. A person with this condition will need medical intervention to stay alive, often involving a mixture of medications, procedures, or medical devices.

The symptoms of end-stage heart disease include trouble breathing, exhaustion, weight loss, changes in skin color, swelling, and abdominal pain all or most of the time. These can progressively worsen.

Caring for someone with end-stage heart failure may involve providing physical and emotional support. Talk with family members about seeking hospice care.