Support Kye’s journey with Leigh disease
Donation protected
My sister Louise and her husband Dave were recently told that their beautiful little boy Kye has Leigh Disease.
Please see below details on Kye’s story from Louise and Dave:
“Our beautiful son Kye was born on 25/04/2023. From the age of 2-3 months we were growing concerned about his development. We had attended many specialist appointments to give Kye the best support. From a recent MRI scan only a few weeks ago we were told the devastating news that our son was born with Leigh disease/syndrome.
Leigh disease is a mitochondrial disease that affects his ability to create energy for all his cells and organs to thrive. This disease is a rare genetic condition that causes rapid deterioration of body functions. The average life expectancy for this condition is 2-3 years.
Each case varies for each individual, though we understand Kye’s condition is severe and we are taking it a day at a time.
Going forward our plan is to create as many happy memories as possible.”
As Louise and Dave try to navigate through this incredibly difficult time I was hoping to try and help them financially. Any donations big or small would be greatly appreciated. If you aren't in a position to donate, could you please share this with your family and friends.
The donations will assist the family in making the most of every second that Kye has in this world. This will help relieve the financial pressure and allow them to continue to care for Kye while spending this precious time with him.
Thank you for taking the time to read this.
Organizer and beneficiary
Rebecca McEwan
Organizer
Daisy Hill, QLD
Louise Gray
Beneficiary