Support Landon's Battle with Erythromelalgia

Our sweet Landon has been diagnosed with a rare disorder called Erythromelalgia (EM). This condition is characterized by episodes of excruciating pain, redness, and swelling in various parts of his body, particularly his legs. To Landon, it feels like his skin is on fire. However the condition has been spreading to other parts of his body making daily life unbearable. His condition is considered rare in children and Landon has not been able to attend school as he is constantly in excruciating pain. Landon has not been able to be a typical ten year old boy who gets to have sleepovers, play with or maintain friends or participate in sports. Landon suffers daily from pain, especially in his legs, which has prevented him from being able to walk and functioning like a normal kid. He has missed time from school due to this painful illness and has required tutoring to keep him from falling behind. He requires special cooling treatments and lots of medications to help maintain some level of comfort. He will never have what we consider a “normal” life. He’s been so brave through all of this.

Krystal and Jeremy have consulted with numerous doctors and hospitals to help find treatment to ease his pain. The only thing doctors can offer is a mile-long list of drugs (that are designed to treat other illnesses, not EM), that a patient can “try” to see if they provide some relief. Landon has pain all day and night and the pain is now spreading to other parts of his body. They have been hesitant to ask for anything beyond prayers for his healing - and in that time, They’ve been so blessed to have had family and friends reach out and wrap their family in love and support. However, Landon's condition is becoming increasingly and permanently worse and the challenges of his care and other personal challenges has brought them to a place they never expected and they can’t do it on their own.

It would be such a blessing if we could all come together and help this family during this difficult time. Please consider making a donation for this wonderful family. Shares of this gofundme is also welcomed. Any donation is greatly appreciated! Click on the following link to find out some facts about this rare disorder.

https://youtu.be/Tl30yYrR6nY